"I discovered
your site a handful of years ago when I was doing research for a
paper for school. What I found horrified me and was exactly
what I needed to learn. I was working on a fitness degree and had
taken nutrition classes as part of the studies. Up to that point
I had been skeptical about soy products, but on the advise of the
nutrition teacher I added soy in large quantities into my diet.
I did not understand why suddenly I felt like I had no energy and
was having multiple problems associated with hypothyroidism. I had
previously had a bought or two of hypothyroidism that had suddenly
appeared and then disappeared before. It was only after reading
through your very informative website that I understand that in
each case I had caused the hypothyroid incidences by purposely or
inadvertently eating foods high in soy products. As I looked back
at previous incidences of hypothyroidism they coincided with periods
of eating large quantities of 'food bars" o! r other items
that I now understand contain soy. Removing the soy products from
my diet have greatly reduced the symptoms and increased my health.
In working with fitness clients I now warn them that they may be
countering their weight loss and health efforts by using soy products.
I especially warn any client that has been diagnosed with hypothyroidism."
"Yes, I
was fed on soy formulas as an infant,
and I have been a vegetarian for 40 years. For 30 years, I have
had soy products as a source of protein, thinking that I was doing
the right thing. Now I have severe hypothyroidism, and the clinical
picuture is not yet complete. I have more tests to take. I have
battled a weight problem for ten years, and I now know why. I am
angry about this soy deception!"
"I was recently
diagnosed with papillary thyroid cancer. I was otherwise
very healthy and live healthy (never smoked, no alcohol, excercise
frequently, low stress). I'm 35 and have been a vegetarian for 25
years. I always eaten lots of soy, but increased my intake significanlty
in the last 2 years because of incresed physical activity (to ensure
I received adequate protien). 5 years ago, my doctor noticed that
my thyroid was enlarged, but functioning normally. Now it has grown
larger and a cancerous tumor was found. My preliminary research
leads me to believe that soy was the cause of the thyroid enlargement
and the subsequent cancer."
"Hi, I am
34 years old and have been eating soy every day several times a
day for 8 months. My periods are extreamly [sic] messed up
now and I am in a 54 day cycle. I would like more info and the connections
of soy and my cycle as well as symptoms of a thyroid condition.
Thank you."
"I have
always been a relatively healthy woman.
Now 48, I've been taking "Revival" products for about
3 years and recently began eating soynuts. Although my TSH levels
were normal, my sonogram found multiple goiters which I need to
see an endocrinologist about. After reading many testimonials about
soy effects, I've decided to completely stop consuming products
with soy. I hope I will not need surgery."
"My son
recently had his thyroid removed at the age of 33 with a
diagnosis of Follicular Cancer. He was fed soy formula as an infant
and still uses soy milk on his cereal. He recently had a head CT
scan for a medical reason and an incidental finding was that his
brain is undersized. He has normal to above normal intelligence.
I read on your website that this is related to soy as well. I was
a very nutritionally aware mother and I am shocked to find that
he may have been harmed by soy formula. I thought I was doing what
was best because he cried and had intestinal discomfort on milk."
"I am a
young 68yr old English woman who now has hypothyroidism and
alopecia from taking soya products. After being taken off HRT I
got urethritis, vaginal dryness and thrush. My GP prescribed Estriol
cream and suggested that eating soya would help redress the oestrogen
deficiency. For several months I put about 5oz of Soya milk on my
cereals. I hated the taste so when I saw an advert for Soya Isoflavone
capsules I thought them a good alternative. I took the recommended
dose which I now calculate contained 36mg Daidzein and 9mg Genistein
per day and other isoflavones. I REGRET THAT I DID NOT SEEK MY GP’S
ADVICE. The advertising is so convincing that it never occurred
to me to question the products' safety. After a few weeks of taking
the capsules I experienced nausea just like in pregnancy but thought
I had a tummy bug which did not respond light diet or starving but
eventually went. A month later I started with insomnia which was
followed by fatigue, ‘brain fog’ and depression which
seemed to link to the lack of sleep. Over the following weeks I
began to feel really ill but could see no medical reason to seek
help. Then, after about three months of taking the capsules my hair
began to come out. We were preparing to go on a camping holiday
to the south of France so I did not want to make too much fuss and
spoil everything. My condition deteriorated and I consulted a doctor
in France who did a blood test and found the readings normal and
gave me a session of hypnotherapy for the depression but it did
not occur to me to tell her about the soya isoflavones. When we
came home a month later I was rapidly balding and in a terrible
state of depression remembering abuse from my childhood that mercifully
I had forgotten. My GP immediately saw that I was not suffering
from a nervous condition and started a series of blood tests, which
indicated autoimmune disease and hypothyroidism. Our consultant
dermatologist diagnosed alopecia totalis. It took about four months
to lose all the hair on my scalp, my eyelashes, eyebrows, facial
hair and some of my pubic hair and this was a most traumatic experience.
By chance, whilst waiting for our son at the physiotherapists’
I read an article in a magazine warning of the side effects of soya
products. I told my GP and we started to look at the symptoms from
a different perspective. It is now five weeks since I stopped taking
the capsules and my facial hair, eyebrows and pubic hair are slowly
growing. There is not much activity in my scalp so far. Thank goodness
for a wig. My thyroxine level has stabilised and my low white blood
cell count (neutrophiles) is slightly increased. I have lost the
dreadful depression and am sleeping better but my energy level is
still erratic. My health problems actually started when I drank
the soya milk. I had a strange experience of acute nausea and hyperventilation
with a blood pressure of 200, which resulted in drugs for HBp and
25 mcg Levothyroxine daily for hypothyroidism the increased intake
of soya isoflavones in the capsules simply made matters worse. I
am now taking 75 mcg of Levothyroxine daily but the last blood test
showed that thyroxine level in the blood is normal. I do not know
whether I will regain all the hair that I have lost or whether my
thyroid function will ever return to normal I only know that Soya
products are dangerous and should be banned."
"I am a
27 year old female. Was a semi-vegetarian during my teen
years. Then went back to eating meat (even red meat) from the age
of 21-26. Then I went back to cutting all meat except fish in my
diet. All was fine, I've never had any symptoms of hypothyroidism
in my life. Recently, I went to the ER for really bad gastrointestinitis.
I had never been so sick in my life, and I couldn't seem to get
better either. I was even doing Reiki on myself everyday and I had
nausea, girgling, and diarrhea all day long for over 10 days! They
found that my TSH level was at 5.8, so they told me the news. I
never thought I'd end up with a thyroid problem on top of an adrenal
one! My endocrinologist came to see me in the ER, and told me not
to worry about it, sometimes the thyroid gets weak when you're sick,
plus you've been heavily steroided for some time. So we left it
at that. Then 2 weeks ago, I decided to have a whole slew of hormonal
tests done because I'm moving soon and would like my new doctor
to have recent results. Well, my TSH had jumped to 8.34 and T4 down
to 13 in just 4 weeks! I knew something was wrong, really wrong,
so I started freaking out, upset that I couldn't find out what was
causing these abnormal test results. In the mean time, I didn't
realize that I had been suffering from signs of "subclinical
hypothyroidism" for a few weeks prior to being sick. I've been
feeling really really lethargic (after sleeping 10hrs /day), weak,
irritable, heart beating harder than usual (palpitating), cold hands
and feet (always), body temperature of 96.7 all the time, and difficulty
concentrating (foggy head, can't remember what I was doing if interrupted),
nausea, gas, light dizziness or vertigo if I turn my head too fast
or look at too many things too fast (bookstore, etc...), waking
up in the middle of the night hungry (for no reason), and a desire
to cry about everything when I know I have no reason to cry and
I'm in good spirits, just consumed by an overwhelming feeling of
discomfort inside. Of course I refused to have to take more pills
than I had to, so I began doing research on hypothyroidism, and
found some articles about soy. I denied that it could be the cause
at first. This was like 2 weeks ago, today I decided to research
it some more and your site came out of the blue! I began to read,
and read, and read all the testimonies. People from all over...just
like me! I looked back at what I've been doing differently and it
came to me... I decided to go completely vegan in August of 2004!
I've been eating soy everything everyday since then. I thought my
lethargy and weakness was due to my job dissatisfaction! No one
ever thought it could of been the soy! So thank you, as of today
I will cut out all soy products from my diet and go back to having
my whey protein shakes, egg whites, kidney beans, lentils, etc.
I will stay a vegetarian and will not go back to eating fish (by
choice) . I'm so glad I've found you before too much damage was
done! It's only been a few months, you've helped me catch it in
time..."
"I want
to contribute to your soy testimonial section. I have been
a vegetarian for 9 and a half years and for the last 5 years I have
been avoiding soy and canola/rapeseed as much as I possibly can.
I have never felt better about myself. I get mood swings (depression,
irritability) every time I eat soy or canola/rapeseed. I have a
very sure feeling that soy and canola causes them. Why? Because
I get those unpleasant mood swings every time I eat them! Don't
tell me they (soy and canola/rapeseed) are are good for me! I know
that they are not!"
"I would
like to add my story to the other testimonials, it is a little
different than most. I am a 31 year old female and have always been
healthy and fit. Last year, I thought I needed more protein (I suppose
hearing all of the Atkins hype) and since I am not much of a meat
eater, I started eating soy protein bars, such as Luna, and 'meatless'
burgers. After only two weeks, I fell ill. In fact I've never felt
so bad in my life. I was completely exhausted, mentally foggy, and
felt like I couldn't breathe. Just walking up the stairs made my
heart race. I went to the doctor, who tested everything....and all
was fine except for my bloodwork, which showed hypothyroid. I had
never in my life had any of the symptoms of hypothyroid, and there
is no history of it in my family. The doctor asked me to go the
following week for another, more detailed blood test to determine
the dosage of the thyroid medication that he intended to put me
on. Well, that night I went online and started researching hypothyroidism,
and to my surprise I found several articles like this website...telling
of the dangers of soy and the effects it can have on the thyroid.
Of course, I tossed out all of the soy stuff and within a few days
I felt 100% better. And when I went back several days later for
the second blood test, guess what? Thyroid function was completely
normal. I truly believe that the soy products are what caused the
problem. I no longer eat soy products and I've been fine. It's too
much of a coincidence that the one time I ate soy products was the
one time I got so sick. I feel lucky that I found out about soy
right away, before any permanent damage could be done. I'm not sure
why it affected me so strongly and so quickly. Please keep up the
good work on this site...it disturbs me that everyone thinks soy
is wonderful, and that so few know of the dangers."
"Thank you,
thank you, thank you! There are really people out there,
who care about all this. The good news is my wife has been off of
soy for 4 months now, and her goitre is gone. She feels much better
and has more energy, and is more emotionally stable. . My tinnitis
was also accompanied by a sudden allergy to wheat, corn, soy - in
fact it can now be activated just by eating. I was told to use flax
oil to suppress the allergic reaction to food. Now I am stopping
using flax because I have found it can have some of the same effects
as soy. This all came upon me like an avalanche so it difficult
to dig my way out. . I hope my message also will validate somebody
else with the same problem."
"My daughter,
who is now 31, was breast fed for a year and then put on
soy formula by our doctor. She has had symptoms of thyroid disease
since adolescence, but doctors could never find it by blood sample.
Last year, she was finally diagnosed with Hashimotos by a holistic
physician but the treatment has not really relieved her. She experiences
depression, has gained weight that is not characteristic for her,
is miserable much of the time. She has seen many holistic doctors,
tried many diets and is very discouraged. At present she is taking
3 gr.. of Nature Thyroid and an adrenal supplement plus many supplements
for lowered immune system."
"I have
been dieting with Jenny Craig for the past 3 months. I also
am being treated for depression & hypothyroidism. Recently,
due to "funny feelings" I investigated the soy content
of this food & found that most of their foods have some to much
soy. I have been satisfied with my weight loss (17 lbs thus far)
& the ease with which the food is available & planned, but
am uncertain about the effect the quantities in these foods may
be having on my "ailments". I don't know if soy is the
main culprit or I may be contributing to my problems by ingesting
soy products in Jenny Craig meals.
I recently had a major depression episode which
followed a sinus infection & antibiotic treatment. The whole
event lasted over 1 week culminating in 2 days in bed with crying
episodes almost daily over the 2 weeks.
I'm not certain what to do because I do want to
continue to lose weight, but am frightened by the information I
have accumulated."
"Hello,
Thank you for this web site. I just read almost all of the
testimonials and found them riveting to say the least. One female
listed symptoms and I found myself nodding my head in disbelief.
I have been on Atkins for three months and have been increasing
my soy consumption hand over fist. I am a true athlete and teach
classes 5 days a week. In this last month I have felt very unwell.
I was as of an hour ago eating two Atkins bars a day, an Atkins
shake, an Atkins bag of chips, and Todds bagels. Wow I could not
even add up the total perhaps 80 grams of soy? Now its over! I feel
that the risk is real and the negative side affects are because
of the Soy. I only wish I read this a month ago. I am truly freaked
and will consume no more Soy ever."
"I am a
48 year old female. I had an appointment yesterday with an
endocrinologist who diagnosed several nodules in my thyroid after
I received an ultrasound and her clinical examination. I was given
a blood test and will undergo a biopsy of the nodules next week.
She is suspecting Hoshimoto's disease. I am doing research to understand
this and learned of the danger of soy. This really connects to my
past year experiences. I was not feeling well and was gaining weight
so I consulted a nutritionist. She suggested a diet for me that
was very "loaded" with soy in many forms, especially in
the products she suggested that I purchase from her. I had never
used soy before this but began to consume it in all areas. I wasn't
sure I was feeling as good as I wanted to but since I was losing
weight and reassured by her that the soy was so healthy I have continued
to keep it in my diet. I have had extreme fatigue haunt me along
with constant respiratory infections, night sweats and heart palpitations.
I have been told this is periomenopause for me. After reading the
information about how soy can be harmful, I can see an incredibly
clear correlation to my health status now and my consumption of
soy. Wow! "
"I'm fortunate
to have discovered the site before onset of serious thyroid
disorder.
I'm a 19-year-old female college student suffering
from what I believe are the effects of high soy consumption. Though
soy was absent from my diet before entering college, I began supplementing
my diet with convenient soy foods like Luna bars (sometimes consuming
three per day), edamame, tofu, and soy protien powder, to ensure
adequate protein intake. Last spring 2003 I added protein powder
to my diet, as well as omega-3 flax oil supplements which has similar
phytochemical effects as soy, and suffered terribly-- from weight
gain despite regular exercise, water retention, amenorrhea, hair
thinning, and a short attention span, memory problems, and difficulty
concentrating on my studies. As a consequence of the weight gain,
I relapsed into bulimia, which I had recovered from two years ago.
This summer while abroad in Asia, excessive soy
was eliminated from my diet (it's indeed the case that Asians themselves
consume soy in moderation, if ever, and almost NEVER near the 25g/day
recommended by our own U.S. FDA). After three months with little
soy, my weight returned to normal, my hair began to recover its
fullness and grew at nearly 1 inch per month (I'd gotten it cut
and colored before I left, so can track rate of hair growth by my
hair color line), I noticed too that my skin was clearing and my
nails were growing at quite a high rate had grown especially strong.
I revived my science studies too, and regained my concentration.
My menstrual cycle resumed for two months.
After returning to college in this fall, I again
turned to soy to supplement my diet (I hadn't made the connection
between soy consumption and my health) with even more force than
before--I loaded my freezer with bags of edamame, Boca burgers,
my pantry with Luna bars, flax seeds, and Genisoy products, my refrigerator
with tofu, high-lignan flaxseed oil. I've been keeping a diet journal,
so I can reference exactly how much soy protein I've consumed this
past semester-- an average of 50g soy protein per day. My once-full
hair began shedding in October after one month of high-soy, I had
my last period the first week of October, and have now skipped nearly
three cycles. I've noticed too that I'm extremely sensitive to salt--just
a few hundred milligrams of sodium can cause my skin to retain water.
I don't smoke, haven't had alcohol at all this semester (though
I could handle it just fine in the summer), and exercise 4 times
per week. My symptoms after just 3 months of high-soy intake:
-hair loss, slow hair growth
-brittle nails, slow growth
-lethargy, and averaging 9 1/2 hours of sleep per night!
-water retention
-memory problems (grades much lower than expected)
This past year has been frustrating. I'm frightened
by the studies on cognitive deficit that results from soy consumption--
I hope that I can revive myself and recover fully by eliminating
soy."
"Thanks
for your work. My intake of soy was extremely high for about
4 years prior to discovering info on dangers of soy, i.e. 3 meals/day,
soy powders in smoothies and isoflavones in female vitamins. Within
a short period of time after stopping intake of all meat and increasing
my soy intake, I began to have severe and abrupt menopausal symptoms
at 41. Subsequent tests showed no estradiol and premature menopause
- complete and sudden shut-down of ovarian function. Also, I was
diagnosed with thyroid nodules, autoimmune thyroiditis, and am now
dealing with a goitre. In addition, I have noticed brain changes
which are subtle and difficult to quantify. My health was perfect
up until this time and I am convinced it is all attributable to
long-term, excessive soy consumption. I have all medical test documentation
and am still dealing with the nightmare."
"My Grandparents
were Seventh Day Adventists / Vegetarians. My grandfather
was employed at Loma Linda Foods factory for most of his adult life
which primarily processed soy based vegetarian foods, i.e., Veggie
burgers. Not only do I have a thyroid problem (diagnosed at 17...
I'm now 52) all of my cousins have thyroid problems as well."
"I had Soy
Formula as an infant. I have been Hypothyroid for several
years. I am 40 years old. The first doctor to diagnose my condition
said that I had probably been Hypo since at least puberty and that
other medical conditions I had been unsuccessfully treated for in
the past including depression and anemia could all be traced back
to my Thyroid. I have been successfully on Synthroid for more than
4 years now, however, I had an episode last year that landed me
in a mental health hospital for more than a week. Just prior to
my admission to this hospital I had my TSH levels tested as part
of my yearly exam and the nurse who reads the results reversed my
prescription. Instead of increasing my dosage of Synthroid to 112mcg,
she decreased it in half to .05mcg. Within 4 weeks I was a nervous
wreck. I had night sweats, heart palpitations, high heart rate,
thoughts of dying and death, and just plain wanting to be off this
roller coaster of life. In a desperate attempt to help me my doctor
called my husband and suggested I go to a mental health hospital.
This was a Friday…by Tuesday of the following week the Psychiatrists
had run several labs tests and asked my husband to come to the hospital
with all of my medication bottles. He sat down with us and said,
“You basically have no Thyroid function at all. Who changed
your meds and why?” I explained what had transpired 4 weeks
prior. He called my physician and that is when they realized the
doctor had ordered an increase in medication and the nurse called
in the script at half the amount. Within 2 days of having the medication
given at the proper level, I could sleep, not more night terrors
or sweats, my appetite returned and I felt like a new person.
I have recently had similar symptoms pop up out
of the blue. I went to my doctor and she said my thyroid levels
were fine. She said I may be premenopausal and than I should increase
my protein intake. Well, I did. With SOYMILK and supplements. I
had manic episodes again, but they got worse. I didn’t sleep
for days and couldn’t eat because my nerves were so torn apart.
I have taken myself off all soy products and I am now checking every
label of the foods I eat to see if I have been sabotaging my own
thyroid meds by trying to increase my protein with energy bars and
curb my “supposed” premenopausal symptoms with soy supplements.
I am very grateful for the information you have
provided and I think someone should get on the bandwagon and tell
people about the dangers of Soy products. We knew smoking was dangerous,
but we never knew the addictive properties of the cigarettes. Now
we know after 30 years of arguing about it and the cigarette industry
is being held accountable for their deceptions. Maybe if the Soy
industry is threatened with the same legal ramifications they will
try to better educate the public of the dangers of Soy and Thyroid
patients."
" I'm a
31 year old Australian male - and after recently reading
the information from your website relating soy to thyroid problems,
I think there is a high chance that my soy consumption (2-4 litres/week
used as alternative to cow's milk) over the last 5 or more years,
has led to my hypothyroid condition (Hashimotos disease), discovered
just this year. The thyroid anti-bodies were about 60 times higher
than normal and of course TSH high and thyroxine low. I now have
to take thyroxine tablets for the rest of my life, and this has
brought the TSH and thyroxine levels back to normal."
"I can't
believe this link. I am a dietitian and I didn't know the
effects of soy on thyroid. I have been drinking 16 - 24 oz of soymilk
per day for a few years. I am active and consume lots of iodized
salt but little processed food. Lately I had switched to a course
salt that was not iodized as stated on the label. After a thyroid
sonogram, I was diagnosed with enlarged thyroid and multiple masses(nodules).
I have had swallowing problems and neck tenderness for ~ 1 year.
My appointment is in 8 weeks to see an endocrinologist. I plan to
completely stop the soy; we'll see if the thyroid begins to shrink
before the appointment. Thank you for providing this valuable information.
I hope that I have time to turn back the clock on thyroid disease.
My levels were normal."
"I was looking
into hypothyroidism and came across info that led me to you.
My 'story' really isn't about my thyroid, but about how my menstrual
cycle was altered by eating roasted soybeans. You see, I'm allergic
to peanuts, and a few years back, I thought I was in heaven when
I discovered these soybeans. I must say I ate quite a few over a
few-week period, and then I got two periods 14 days apart instead
of the usual 25 or 26 days. I visited my General Practitioner, who
is a pretty smart lady, and she figured that the soybeans had disrupted
my cycles, due to the high levels of phytosterols in them. I was
very disappointed that I couldn't eat soybeans as well as peanuts,
and tried them again a few months later. The very same thing happened
to my menstrual cycle again, and that convinced me that the soybeans
were to blame. My cycle has always been very regular, so that's
how I knew something was going on. Also, my breasts were extremely
tender for weeks at a time after eating the soy, which supported
the hormone disruption theory. It's funny, because I've always wondered
about the effects on the general population of eating soy products.
I didn't think I could be the only one affected. Kinda makes me
wonder about how I got hypothyroidism after a few years on a meatless
diet, but not able to eat nuts or whole grains (allergic to those
too!). So, I discovered tofu, which I like, and ate quite a bit
of. Now I eat animal protein and take Synthroid, and feel better
than I have in years."
"CHECK IT
OUT. I AM 37 AND WAS HAVING HOT FLASHES. SO I TRIED SOY.
MY HAIR WAS FALLING OUT TERRIBLE FROM THE ROOT WHEN BRUSHING, I
WAS TAKING 100MG A DAY. I DON'T MEAN A LITTLE IT WAS HORRIBLE. I
BEGAN FEELING FATIGUED AND HAVE NOT WORKED OUT IN A WHILE, I WAS
WORKING OUT EVERYDAY AND RUNNING TWO MILES A DAY. NOW I HAVE GAINED
TEN POUNDS AND I FEEL TERRIBLE, I ALSO NOTICED MY MOOD SWINGS. I
HAVE BEEN OFF SOY FOR A COUPLE OF WEEKS SO I AM JUST WAITING, THE
HAIR THING WAS REALLY SCARY. GREAT WEB SITE , AT LEAST I AM NOT
ALONE"
"I converted
to a vegetarian diet starting in October of 2001. For the
next year I relied heavily on soy products, particularly protein
powders (Spiru-tein) mixed with soy milk (Silk,plain). I tended
to consume this in fairly large quantities (10-20 ounces) on a daily
basis. I also consumed regular quantities of tofu, tempeh, and other
commercial soy products on the market. Approximately in October
of 2002, I went to the doctor suffering from lethargy (I was falling
asleep at work) and figured that maybe I had an iron deficiency
or some other type of malnutrition. My blood was tested and my TSH
was 24 (quite high, hypothyroid indicator, most hypothyroid sufferers
are in the range of 2 to 5). The only family history I have is a
sister with Hashimoto disease (thyroid destroyed by strep) so that
was unrelated. There were no other factors in my life that would
have caused this (little did I know...).
I immediately went on Levoxyl (very small dose,
but immediately starting feeling better). An additional blood test
a month later prompted an increase of the dosage. A few simple web
searches later, and I started reading up on some of the evidence;
much of it I simply ignored. It was not what I wanted to hear. It
scared me enough, though, that I stopped consuming soy milk in any
meaningful quantity. I continued to have frequent servings of tofu
and other products containing soy protein isolate, however. After
that, I got irresponsible, and simply refilled my Levoxyl prescription
without getting retested. That is until last week, when I noticed
my heart started skipping beats for the duration of 24 hours. Without
any other seemingly relevant factors (i'm a 33 year old male, in
decent condition, exercise on a daily basis), they did another TSH
test. This time it was 36! I've increased my dosage of Levoxyl and
am feeling good again. After reading the evidence presented by you
and others, I am convinced that my consumption of soy products has
contributed to my condition, and I am committed to ending my dependence
on soy. Finding another protein source will be hard, but I now see
it as necessary. I can only hope others don't suffer my fate, as
it would seem that the soy industry couldn't care less if they do.
Before sending this email, I just read some of the 'Soy Testimonies'
and I am in complete shock, they say exactly the same thing I just
wrote. Could this mystery in my life truly be solved?"
"I am 32
years old and was diagnosed with hypothyroidism three weeks
ago. I began consuming soy in earnest about four years ago in response
to consumer information claiming that soy may help to decrease one's
chances of developing breast cancer, heart disease and more. My
mother died of breast cancer when she was 39 years old and I have
been diligent in eating an extremely healthy diet geared towards
maintaining optimal health and disease prevention. During the past
four years I incorporated numerous food products in my diet that
were primarily soy based. Also, I regularly consumed a large amount
of soy protein powder that I would add to protein shakes and to
food during cooking and baking. During the past four years I, on
average consumed at least 40 - 60 mgs of soy a day. I now have a
goitre and hypothyroidism and severe anaemia. Based on the information
I have read about soy subsequent to this diagnosis, I have a great
concern that the soy may indeed have played a large part in generating
this thyroid disorder, if not be the direct cause."
"After reading
testimonials on your website, I think I have solved a two
year long health mystery. My story is just like everyone else's,
and my "regular" (former) doctor attributed everything
to old age....(I don't consider 53 to be old). I switched to an
alternative doctor and the first thing he told me was he does not
recommend soy products. In the past two years I went from an energetic,
happy-go-lucky, healthy person. I figured that I needed more protein,
and meat wasn't good for you, so I switched to soy: soy protein
shakes, tofutti ice cream, soy milk, Luna bars (and others), soy
cereal, cookies, you name it....if it was soy, I ate it. I began
to get run down...had severe leg cramps, muscle twitching, tinnitis,
joint aches and stiffness, gastrointestinal problems, and worst
of all, hair loss. I got colds and bronchitis one after another.
I couldn't concentrate long enough to exercise, and was terribly
depressed...I felt like I was in a hole that I couldn't get out
of. My doctor said my thyroid and hormones fell into the "normal"
range....however, what's normal for one person isn't necessarily
normal for another. She offered no explanation, other than I was
getting "old", and that's the way things are.
God bless my new doctor, and your website, and
all the people who are telling their stories. I never in my life
thought that soy could be bad for people, or that I had reactions
to it. I am now on thyroid (naturally made) pills, and have been
off soy (that I know of...it's hidden in a LOT of foods, with various
different names) for two weeks. My muscles and joints don't hurt,
I'm getting my "groove" back, and am exercising. I feel
as though I've been lost somewhere....almost to the point where
I felt mentally ill. My bronchitis is gone, and so is my tinnitus,
eyelid twitching, and leg cramps. I am anxious about my hair...and
I know that hair growth can take a long time. That's all I need
to get back now. If anyone has any more knowledge on thyroid and
hair, please submit your story. This seems to be an epidemic, and
the public is being greatly fooled by people touting the advantages
of consuming soy. I am going back to eating real, whole, natural
foods like our elders ate. My "miracle" food, turned into
a nutritional nightmare. "
"I have
several benign nodules on my thyroid. I am going thru several
tests to determine what is wrong with my thyroid. I was on a soy
based diet called "Herbal Life". "
"I am a
vegan and for years have eaten soy products, and over the
years have slowly found myself being more and more fatigued and
not feeling well. I was an opera singer, and singing is almost impossible
for me now because of my fatigue. It was only two years ago that
the doctors diagnosed me properly as having hypothyroidism. In September
of 1999 I started losing my hair, in huge amounts. None of the doctors
knew why and dismissed my concerns that maybe it might be caused
from the soy protein I was eating (I ate a lot of it, including
these "Luna" protein bars, at least 3 a day). Through
my own research I found out about the connection between soy and
thyroid problems (along with cruciferous vegetables). It wasn't
until 4 months later that the doctors agreed to give me a thyroid
test and, to their surprise - not mine, they found I was severely
hypothyroid. They put me on Levoxyl thyroid medication which only
made my hair fall out even more and made me feel worse. I took the
medication for a year, and finally gave up and started doing my
own research on what I can do for it holistically. I started taking
some vitamin supplements and kelp and cut out soy and cruciferous
vegetables for the most part, from my diet. It's helped some, but
I still suffer from extreme fatigue and what feels like my thyroid
is always swollen. I still can't sing much and that's the part that
is hardest to deal with. I had the anti thyroid antibody test done
and it was positive, but I'm not sure what that means. As of today,
I'm trying to feel better by watching my diet, trying to exercise,
which is difficult because of how tired I get, and taking my supplements.
Since I'm a vegan, I can't take the animal derived thyroid medications,
which I've heard work better for normalizing the thyroid than the
Levoxyl synthetic drug does. I'm devastated by this in my life at
this point, I'm only 47 years old, but I think all of it started
at least 10 years ago when I mysteriously lost my voice and never
quite got it back. In 1999 when I was diagnosed, prior to the month
of September of that year, I had been eating a LOT of soy products,
thinking that I needed the extra protein, because I was so tired
all the time. I ate 3 Luna bars a day, each bar has 10 grams of
soy protein in it, and after a month of doing that, that is when
my hair started falling out. Thankfully most of my hair has grown
back, but I still dread looking in the drain every time I take a
shower for fear of how much hair is on the floor of the shower drain.
I'm still not well, struggling with this every day. I'm trying to
get back into singing again, and it's difficult and frustrating,
because the fatigue in my body directly affects my throat and when
my throat gets tired, the singing just doesn't work. Anyway, I thought
you'd like to hear my story. I'd love any advice you can offer.
I've been trying desperately to find a lecithin supplement here
in the United States that isn't soy derived, but it doesn't exist.
Any suggestions on that? Are there other lecithin supplements that
aren't soy? Thank you for your informative website. I wish I had
known about it years ago. I feel like I've lost a lot of myself
and my life to this disease, that I won't ever get back."
"While being
on a nutrition/exercise program, it was recommended that
I increase my intake of protein, so I thought, what better way to
do so, than take a Soy protein shake each day? I started taking
Soy protein shakes, with added isoflavones, at least 4 times a day
in order to meet my daily protein requirements. That was 14 weeks
ago. In the beginning all was well, but I did notice a lagging tiredness
that no amount of sleep could cure. As well, I noticed that my menstrual
cycle was out of whack, and that I was starting my cycle one week
earlier than usual, and having prolonged bleeding. I chalked this
up to peri-menopause. Recently, however, within the past week, I
have noticed dramatic changes in my health and well being. First
with extreme tiredness, which just wouldn't go away, then on to
headaches, which sometimes stay with me day or night. Then I began
to notice the following symptoms, and they seemed to correlate with
my protein shake intake, usually within 20 mins of consuming a shake,each
and every time.
>1.Increased heart rate/heart palpitations
>2.Diminished mental capacity
>3.Nausea
>4.Gastro intestinal upset/problems
>5.Prolonged Menstual bleeding
>6.Headaches
>7.Dizziness/Vertigo
| >8.Increasing tiredness and lack of energy
Needless to say, I have examined my diet, and
nothing unusual has occurred, nor has my diet changed in any way,
and so I have come to the conclusion, after much research, that
Soy has to be the at the center of my problems. As of today, I will
no longer use Soy or Soy based products in any capacity. I have
learned that hard way, that natural isn't always the best.
After an ultrasound, which was ordered because
my doctor noted that my thyroid gland was palpable, I was diagnosed
with an "early multinodular goiter". I will have a blood
test next week. I have no other symptoms associated with thyroid
problems. I have started to research goiters and found your website
asking to be contacted regarding concerns about thyroid problems
and soy. I have never had thyroid problems before. I became a vegetarian
in the mid 1990s and have consumed soy quite a lot since that time
(soy milk, various forms of tofu, boca burgers, tofu-pups, soy ice-creams
etc. etc.).
I was just diagnosed with a high TSH count and
high blood sugar. This is shocking to me as I have my Masters in
Kinesiology, Health and Nutrition and am extremely healthy. For
years I've consumed a well balanced diet but each year my consumption
of soy-based products increases. First, I slowly weaned out all
red meat then poultry, next fish, finally egg whites. I now am vegan
but I try to get protein from beans and nuts as well. The problem
is, that even though I eat beans and nuts, I still eat a ton of
soy (soy protein powder on my oatmeal with soy milk and a soy Luna
bar for breakfast, a box of Mori Nu Light tofu and some grilled
tofu on my daily garden variety salad for lunch often with another
soy-based protein bar or a Silk soy yogurt for "dessert",
often as a late night snack I'll have Soy O's cereal with once again,
soy milk! I thought I was just being a healthy vegan when my doctor
diagnosed my thyroid problem. It's going to be a challenge to cut
out such a huge portion of my vegan protein but after reading your
extensive testimonial list, I am hopeful that drastically reducing
my soy consumption will reverse my recent thyroid problem before
I have to start taking meds.
Five months after discontinuing using the product,
I am still recovering from the ill effects of Revival Soy. I know
that they always say "if it sounds too good to be true, it
probably is" but I was not getting any answers from my medical
doctor, so I sought out help on my own. For about 5 years I had
problems with menstrual irregularities, heavy bleeding, mood swings,
weight gain, low sex drive, some hot flashes, etc. and yes, I am
a 43 year old woman. Physicians seem to brush our concerns aside
by saying "that's just how it is; you're getting older-just
live with it." Revival's claims sounded like a wonderful answer
to my exact symptoms-and, I believed, healthy and harmless. I have
always been conscious of my diet and have enjoyed tofu occasionally
as a substitute for meat. So the idea of a supplement made of soy
seemed ideal, as I had the impression that it was a very healthy
food product. Their product gives a very concentrated amount of
soy in a single serving, which they say is necessary to achieve
positive results. I had never heard anything about the negative
side. I can't stress enough how wrong I was in believing the advertising
hype. A little of something may be ok, but more is definitely not
better in the case of soy. I had been tested for low thyroid several
years ago, as they suspected that may be the cause of my problems,
but the numbers came up normal. So I just suffered on in silence,
hoping it would get better before it got worse. It didn't. So in
August 2001, I decided to try Revival after reading all their information
on their website. As they recommended, I drank one shake a day.
Usually for breakfast mixed with water or skim milk, fruit or yogurt.
This worked well for me, as I tend to need an energy boost in the
morning. For the first two or three months I felt fairly good-lost
a few pounds, my skin seemed clearer, hair growth on my face and
legs seemed finer, I had more energy and mood swings seemed lessened.
Just what I was looking for, I thought. Then in early December,
I noticed I was losing more hair than normal and that my hair seemed
limp and dry. I just attributed it to the change in season, as where
I live tends to be very cold and dry in winter. As the month went
by, my energy level seemed to decline rapidly and I was losing more
and more hair every day. I also noticed that my body hair appeared
to stop growing altogether. I became increasingly fatigued, spacey,
moody and some days just felt unable to get out of bed. My body
temp was at times below 97 degrees, so I constantly felt cold. In
a matter of two weeks I gained about 6 pounds without increasing
my food intake. It was if my entire system was rapidly declining.
I had times where I would sit and stare, unable to get up to do
anything. At times, I was so fatigued, I felt like I was dying.
I could see my scalp in places where I normally had very thick hair.
It was coming out by the handfuls in the shower every day. I developed
tinnitus in my left ear (which > five months later is still there,
though it has lessened somewhat.) Also I noticed aches and pains
in my joints and muscle twitches, especially at night. Fortunately,
my friend mentioned to me that soy could be problematic for people
with thyroid dysfunction and possibly goitergenic, which I had never
heard of. But since that was the only change I had made in my diet,
I decided to stop using it immediately. That was at the end of December.
After reading info on hypothyroidism, I believed that I had many
of the symptoms and since it was a seemingly common problem I felt
sure that they would simply say my thyroid was the problem. I saw
my doctor, who pronounced me completely healthy and said to take
antidepressants. I tried to get an explanation for the hair loss
and all the other symptoms, but she just brushed all that aside
and said that depression sometimes causes strange physical symptoms.
(Believe me I won't be seeing that doctor again!) Because my thyroid
numbers were normal, I was not taken seriously. I saw two more doctors,
who were also baffled by my symptoms. They mentioned Chronic Fatigue
syndrome at one point. Fearing that I would continue to fail in
health, I began my search in earnest for anything to explain what
was happening to me. Led by the stories others told about thyroid-like
symptoms related to soy products, I began searching for information
about harmful effects of soy and as you can guess, I have found
a lot of information- and I feel that it is necessary for this information
to be shared. I am amazed at how many people could be harmed while
the industry just keeps pushing soy as a wonder food. I made copies
of everything I found and sent it to the doctors, hoping they would
look at what happened to me from a new perspective, and perhaps
recognize the same thing if it came along again. No one should have
to feel that awful or be discounted by people you are asking for
help. After about six weeks from quitting the soy shakes, my energy
gradually started to return. Each day I had more hours of time in
which I could get some normal tasks done, which is important as
I have a young child and work full time outside the home. My mind
began to clear, and though I'm still losing some hair and have developed
very weak fingernails, I can see new hair growth starting. It took
several months to get the soy out of my system, and now five months
later, I am feeling almost normal, though my left ear still rings
and I have pain in one shoulder joint. I contacted the Revival company
and pushed them to refund my money, which after some protest they
did. I also wrote to the owner of the company and personally told
him what happened to me. Maybe if more cases are recognized, they
will reconsider their claims and see that for some this can be extremely
harmful. Or at least provide a warning on their product. I am grateful
that my health has returned, I know my hair will grow back and I'm
definately a wiser consumer after this experience. Hopefully there
was not permanent damage to my health and of course I can't reclaim
the time lost from work and most importantly, my life. I share this
information with anyone I know who might be at risk from soy products,
and I have become very aware of food ingredients, especially in
the foods I feed my child."
"I am a
fairly healthy 36 year old female who runs about 20 miles
per week and walks about 5 miles per week and does light toning
& cardio exercises. I fell in love with these "Zone"
bars which contain 16 grams of soy protein per bar, approx. 32 mg.
of soy isoflavones. I began eating these things as meal replacements,
etc...but have recently gotten down to where I only eat 1 bar daily,
SOMETIMES 2. I was recently diagnosed hypothyroid. Ever since I
went on the Synthroid, I have barely been able to run over a mile
without experiencing dizziness and nausea. I was contributing all
of my problems to the Synthroid and did some internet research on
overdosage, etc...only to find that it's probably the soy that has
caused my problems in the first place! I have had considerable hair
thinning, trouble maintaining and losing weight, despite my "healthy"
diet & exercise regimine. I am tired all the time and experience
feelings of depression more than not. I have urinary urgency despite
my constant Kegal exercising and the oxybutinin I take for spastic
bladder. Today I quit both my Synthroid as well as the Zone bars
- can't say that I feel any different yet, and don't expect to feel
any different for quite some time. But can you tell me whether or
not hypothyroidism can actually be reversed? My diet is 30% protein,
40% low glycemic carbs, and 30% fat."
"Thank you so
much for your article that connects soy products to Thyroid,
especially soy milk with Isoflavone powder. I am suffering from
Hypothyroid for many years, and am taking medication to balance
the hormone function. Recently I read an online article( promotion)
for the Isoflavone product and the benefits women at Menopause can
gain from taking it. I bought this product 3 months ago and started
to take it daily. I took a blood test a few days ago to determine
the level of my TCH. My physician called me today and told me to
came immediately to his clinic since the level of my TCH increased
dramatically. (from 5 to 11)."
" I am crying
after reading everything on your website. I am a 30 yr old
vegan (for 10 yrs now) and have a BS in Nutrition. I exercise 5
times a week, both weight training and cardio, eat extremely healthy
(soy all day long!), no drugs, no drinking, no smoking, etc. A year
ago I was rushed to the hospital with a heart rate of 250 bpm at
rest. I have had palpitations ever since, but am not taking any
drugs for it being that I have asthma and a very sensitive system.
I have had allergies since I've been 22...but my allergic symptoms
are now sounding more like symptoms of hyperthyroidism! Rapid heartrate,
shortness of breath, irritability, forgetfulness, mood swings, palpitations,
intolerance to heat, depression, weight gain, increase or decrease
of appetite, etc. I am wondering if I have hyperthyroidism and if
my HEALTHY diet is the reason why! I am VERY concerned about soy
and why I have never heard of this, especially me...someone with
a degree in nutrition!!!!"
"I have
much soy products a day and I have hypothyroid. They can
not control my thyroid and don't know why. The doctor up my synthroid
to 137 and this week up to 150 because they say it is off. My joints
are in pain, I am exhausted and feel awful. I am 48 years old and
I mention to my doctor about an article I read about taking soy
products but she never heard of it and said I don't think that will
hurt you but kepts increasing my medication not knowing what is
causing it. It has been normal for the past 7 years I have had synthroid.
The last year and a half I have taken soy burgers, atkins bars and
numerous soy products and have been having so much trouble since.
I went to another doctor and the same thing. Soy is good for you.
I am confused but they have no answers."
"I started
ingesting more soy products about a year ago after attending
a class given by a local church. My health has been deteriorating.
My mind has not been able to focus and the doctor sent me a letter
saying that my thyroid was "markedly low". I started taking
a thyroid medication just this past Monday. I feel like I'm ready
to die."
"I am a
seventeen year old who will be turning eighteen next week,
and celebrating my birthday by recieving nuclear radiation on my
thyroid. This spring I was diagnosed with thyroid cancer, and thus
had my thyroid removed. This occurance boggled both my doctors and
I. During this time period after the labectomy I have pursued many
leads on why a healthy seventeen year old could get this disorder.
I just recently became aware of the alleged correlation between
soy and thyroid function. I have been a vegetarian since before
I began puberty. Soy products have constituted a large part of my
diet in my attempt to provide my body with adequete protien. I also
spent most of my life drinking soy sauce ( I was a weird little
kid). I would go through a few bottles a week. Your arcticle requests
any information on persons who were fed soy formula and have encountered
thyroid problems.My mother did not breast feed me, but used soy
formula as an alternative. I am very interested in any furthur information
in this study of the harmful effects of soy. I hope that your study
may result in more public attention of this issue to potentially
prevent occurances like the one which I have had to suffer."
"As a baby
I was given soy to drink as I could not take milk or formula,
as I was lactose intolerant. I was a very sickly child, and hospitalized
and my mother brought me soy milk to drink in the hospital in place
of regular formula. I was hospitalized 3-4 x by the time I was in
the 3rd grade. It continued, variant medical conditions throughout
my life. Tumors in my uterus, with surgery for an exploratory, then
hysterectomy, then oopherectomy. Lump biopsy under my arm. Tumor
in my thigh, removed once, then a second time. Unexplained breast
discharge, physiological they say. I have had difficulty breathing
while hiking and walking, and have undergone two stress tests reasantly.
Have been instructed no hiking, no strenuous exercise until they
can figure out what is going on. I have also had Thyroid cancer,
a right lobectomy and isthmusectomy. Have been on thyroid medication
ever since. I am very tired, get so tired that there are days, I
can't do one more thing, can't say one more word. Just climb in
bed. No matter if it is 6pm at night and the eveing is still young
or not. Many days I am thankful I have been giving the chance to
see one more day. But I must admit, I have many days of not feeling
well. Fever like, always checking my temp, and at times run a low
grade temperature. Many not feel good days as of late. I started
a crusade for health, as I was tired of not feeling well. Part of
why I began walking as a daily regimen, hiking mountains, eating
lowfat meals that I have adapted from regular recipes, and watching
my cholesterol. Was all about the health crusade. I read about soy,
the health benefits, and figured it was a good thing to do as my
health regimenl. My father-in-law introduced me to it on a trip
to Maine in January. He told us it was suppose to be good for you.
Help fight cancer. Not only did I have the thyroid cancer, but in
November had skin cancer surgery. Every day I have consumed about
60 mg of isoflavones , about a cup and a half of soy milk on my
wheat bran cereal with oat bran and banana. Since about January
of this yr, 2001. My thyroid bloodwork, that is taken regularly
began to come back abnormal. An ultrasound was done to look at my
left lobe of my thyroid which was all I had left after my cancer
surgery. They found a believed to be benign lymph node on my left
lobe, but otherwise they say it was a normal looking thyroid ultrasound.
Still, no explanation of why my thyroid blood level was abnormal.
My husband and I went away camping for an extended stay, just a
few weeks ago, for nearly three weeks. Between June and July this
yr. We fished, walked and enjoyed our trip with nature. But no hiking
or anything strenuous on this trip. Before we went on our trip,
we discussed the fact that we would not be able to keep the soy
milk at the correct temperature all of the time, with just ice.
So we decided to take a break from our seemingly healthy lifestyle,
and fix pancakes, fried potatoes, and such for breakfast. So for
three weeks I did not consume soy milk. I had to go for my bloodwork
check up to see if my blood level was still elevated on my return
from the trip. Oddly enough, today, the very day a friend told my
mother that I should not be taking soy because I am on thyroid medication,
I find out that my level has come back down to within normal limits.
Why it went up in the first place became increasingly disturbing
to me over the day today. So I started searching the internet tonight
after the warning about soy and my thyroid medication. I was shocked,
what I have found. Article after article with warnings about Soy.
Why in the world do the companys that market soy milk not put out
warnings about soy milk for Thyroid patients? I have been feeling
so ill. If I had not been told by my mother's friends of this news,
I would not have known and continuted to take soy products. But
even further disturbance is the fact I drank soy as a baby. What
kind of effects could this have had on me? That was in 1958. I have
had digestive problems, esophageal problems, they say muscle problems...
I've spent many, many days at the hospital and at Dr. appt's. Is
there some legal action that anyone is taking? I don't smoke cigarettes,
I opted not to due to health reasons, I don't drink alcohol. I eat
fairly healthful I thought, and I feel very cheated knowing I have
had potentially been harmed with already having thyroid cancer,
and hypothyroidism and clinical hyperthyroidism. Drinking soy milk,
with the isoflavones was suppose to have been helpful I thought.
Especially after reading the labels on the milk cartons...No warnings
there!!!!"
"I am a
monk who just completed a long retreat which was terminated
early beacause of health problems. After the retreat I saw a doctor
and was told that my thyroid was not functionning at all. I had
never had thyroid problems and was a bit shocked. I am a man and
had only heard of women experiencing this problem. I got on the
net and discovered the connection with soya products. The pieces
started fitting together. During the retreat my staple was tempeh
and tofu supplemented by a bread that I baked. I put lots of soya
flour in the bread not knowing that this could be a problem."
"I was having
severe hot flashes with menopause. Someone told me about
Healthy Woman Soy Supplement. I tried it and it worked (after about
a month) to control the hot flashes. I took it off and on for about
two years. Then in a complete physical, I found out I had hypothyroidism.
The doctor put me on .075mg Synthroid. I took it for about a year.
About three months ago, I had a bone density scan. I am a little
under average. I believe the following chain of events occurred:
- Soy caused hypothyroidism
- Synthroid affected my bone density
- Doctor wanted to put me on HRT to deal with the bone density
I could see a pattern here and I stopped taking
everything except my multiple vitamin and a calcium supplement.
For two years I ingested large amounts of soy
on a daily diet: soy milk, tofu, soy cheese, soy burgers and soy
yoghurt. Having a milk sensitivity I naturally substituted soy as
a source of protein. Last fall I had a medical crisis: my TSH soared
to 25.50; lost more than half my hair; developed large uterine fibroids;
evidenced rapid cellular growth (benign) on both breasts; and lost
elasticity in my muscles, including my bladder causing urinary incontinence.
I am 43 years of age. Upon eliminating the soy, my TSH is now 1.4
(I had to be placed on a therapeutic regimen of 75 mcg of Synthroid)
and my alopecia has reversed. I will undergo mammography in several
months to determine if the cellular growth has abated. I greatly
appreciate your interest in addressing this critical matter. I suffered
needlessly and if not for my hair loss I would probably still be
using soy. It was the alopecia that gave me great cause for alarm."
"I just
found your site, completely by accident, and I am so shocked.
I need to know how to find out more information concerning the link
between thyroid disease and soy. Is it just hypothyroidism, or can
it cause hyperthyroidism as well? You see, I've just been diagnosed
has having hyperthyroidism. This came out of nowhere, and I can't
believe it "just" happened. Several months ago I quit
smoking, and having made that step, I decided to adopt a much healthier
lifestyle. Part of this included becoming a vegetarian. I didn't
worry about getting the right nutrients, because I added soy to
my diet. I started by replacing meat with soy products, Morningstar
bacon, burgers, hotdogs,ect..... Then I read about the soy product
Revival. I'd been using it everyday for about a month, when I got
what I thought at the time was the flu. The only symptoms I had
was a very high temperature, and a rapid heart rate. Well, the fever
went down, but the heart rate never did. I thought I had a heart
problem, but couldn't get a doctor to take me seriously. Afterall,
I'm only 36, and in very good health. Or, at least I was...........
The doctor finally ran some tests and found out that my thyroid
had just gone crazy. His words, not mine. I am so upset, what makes
this really ironic, is that if I would have just kept smoking, I'd
be healthier today."
"I have
a 15 year old daughter who fits the description of a soy
fed infant. She was fed soy formula for an excessive amount of time
(almost 2 years (less in the later year, of course)) because she
did not tolerate milk. I think she has hormone imbalances that are
causing various problems physically and emotionally. My daughter
has abnormally excess body hair. This is not specifically mentioned
as a symptom. From what I understood from the articles I have read
about this excess hair condition and the soy, the ovaries are "in
charge" of stimulating androgens and testosterone hormones.
Testosterone are the hormones that stimulate hair growth. This condition
is also, though rarely, caused by ovary cysts...which I wonder if
these could be caused by the soy formula early on. My daughter began
having pubic hair around 5 and I remember noticing a swollen look
to her as an infant when I changed her diaper. It always concerned
me, but I could never connect a cause. These conditions are not
specifically mentioned as symptoms of the soy, but I speculate it
is related. She also has asthma, allergies, ADHD, started gaining
weight (without reason) last year (no diet has been successful)
and has irregular menstrual cycles (although she officially began
her cycle about 2 years ago)."
"I am a
very healthy 19 year old male. I run 2.5 - 3 miles every-other-day
and do weight training on the other days. I started using Soy Protein
mix in January when my body fat was around 5.5%. Over the last 5
months I have gained almost 40 pounds and my body fat has increased
to almost 10%. This is not the result I have been told would come
from soy protein. I used to be able to eat ANYTHING, and not gain
an ounce. I still follow a strict, very low-fat, organic foods diet
(mainly consisting of chicken, tuna, broccoli, cauliflower, celery,
etc.); however, I still seem to gain weight (and body fat), even
when eating salads and other healthy meals. Could this be a result
from overloading my soy intake?"
"I have
been using soy milk products for approx. one year. Prior
to that Ihave been on Thyroxine. Approx 3 months ago I had to increase
that dose almost double. I have been suffering from extreme tiredness
and lethargy and have developed a problem which has caused me to
lose an unacceptable amount of weight. I am 5'11" and only
62kg. When complaining to the doctor I my blood was tested and they
found I had toxoplasmosis and all was put down to that. However,
after further weight loss I returned to the doctor who referred
me to a gastro fellow. I have had a colonoscopy and a endoscopy
and they have taken a biopsy from my bowel, but found nothing. I
read your page with horror and wonder if I have been going down
the wrong path altogether."
"I am a
30 year old vegetarian who has been taking in around 40-50
grams of soy protein a day. I have recently started having problems
with heart palpitations and weight gain. I am on the Weight Watchers
points system and I have gained 11 lb. in 2 1/2 months. I have been
very disturbed by this gain, knowing that I am exercising 5-6 days
a week and staying very active every day. Everyone else on WW is
losing except for me it seems. My grandmother was diagnosed with
thyroid disease many years ago and I seem to have all the symptoms.
Weight gain, palpitations, memory loss and these articles I am reading
are really beginning to make me aware that what may be to blame
is all this soy I am taking in. Now I am very confused because I
don't know if I have damaged my thyroid and if that is my problem.
I am going to stop my soy intake TODAY."
"Thank you
for the excellent information you provide online. I'm contacting
you to say that i MAY have a thyroid abnormality caused by excess
consumption of tofu. I live in a community that is completely vegetarian.
Our cooks use tofu as a common meat substitute (nearly every day).
In the last few months I have lost about half of the hair on my
eyebrows. As you may know, eyebrow hair loss is a symptom of hypothyroidism.
My skin also shows signs of the syndrome.
For better health I started eating a cup of oatmeal
with soy milk powder added for breakfast every day. I started getting
a headache every afternoon I worked which would turn to nausea when
I drove home. After I stopped soya this is very rare now.
I began drinking soy powder last year and just
this week I have been diagnosed with Graves Disease.
My daughter has Grave's Disease which I believe
was caused by being fed soy milk in infancy."
"I want
to sincerely thank you for your website!! I am a 58 year
old woman, and have had two operations for cancer. The first operation
was for uterine cancer, the second for a tumor growing on the abdominal
wall, which was possibly caused by breakage of the uterus in the
first operation. At any rate, the OBGYN that performed my first
op. wanted me to take the combo estrogen/progesterone drug...I opted
to take phytoestrogens and use a progesterone cream. When I found
cancer once again, I went to an iconologist (I believe, a very responsible
one). He immediately told me to get off soy, black cohosh, and any
other estrogenic substance that I had been taking. He then put me
on a large dose of progesterone. I am doing very well, staying on
progesterone for the time-being, and treating any estrogenic property
like the plague."
"I had thyroid
problems as a child, and was treated with medication then.
As an adult, I didn't require any medication for years. I began
taking phytoestrogens, including drinking lots of soy milk, eating
tofu and enjoying miso, plus taking a vitamin which contained soy.
Lo and behold, I started having thyroid problems again. I now take
medication again. I have completely discontinued all soy products
and any other phytoestrogen products (read my letter in the cancer
section). So far, I am still required to take medication, but hopefully,
my thyroid will become balanced again. I am so very pleased to find
your web site. I have been trying to explain to many women the dangers
of using soy products as a miracle solution to everything without
consideration of their age, conditions, etc. Now, I can send them
to your site as backup. "
"I was very
ill without realising that I was consuming Soy and not knowing
until I had gone to "Hell and back" that in all probability
it was the Soy that caused it. The following is my story:
I was diagnosed 30 years ago with what was described
as mild Hypothyroidism. I had very little problems with mental ability
but suffered mostly with weight problems. During 1991/1992 I became
premenopausal and that was when my problems started. Spasmodic at
first but over the years as the menopause progressed I got progressively
worse. I suffered from short term memory problems, inability to
concentrate, couldn't even comprehend what I was reading. I spent
more time in "Cyber Space" / "Brain Fog" than
I did in reality. I would have to read one page over and over again
before I could absorb the details. Watch TV one night and the next
day I couldn't tell you what I had seen. I am a Receptionist / Word
Processor operator and I was making so many mistakes in my work
I was eventually verbally threatened with dismissal. I was to learn
much later that what in fact saved me from being dismissed was a
work colleague, who had worked with me years before and had returned
to work with us once again, insisting that what was happening was
not me. Despite having the spellchecker on my computer I still was
not able to pick out spelling mistakes. More often than not as the
years passed I would type a word backwards without even realising
I had done so. I would proof read my work and would just 'read'
right over my mistakes. I had no idea what was happening to me,
and neither did my doctor. He was just as puzzled. He eventually
referred me to an Endo at my local hospital to arrange for me to
have tests done for possible Alzheimers - yes, Alheimers - and what
is the claim about Soy - protects from aging!! My tests showed that
I was above average for my age with everything except the problems
I was having. No help there. As time wore on I got to the stage
at work where I couldn't even remember how to answer the phone when
it rang!! The phone would ring, I would pick up the receiver and
....... blank - what do I say. By this time my speech was slurring,
and still no one could come up with an answer. It all came to a
head one day when I was shopping. I was walking down the street
and the next thing I knew I was walking across a very busy intersection
AGAINST the lights with the drivers of vehicles trying desperately
to miss me. I have absolutely no recollection of even getting there.
I can only think that what brought me out of it was an irate motorist
tooting his horn at me!! When I realised what had happened, my first
thought was I had had a mild stroke. When I saw my doctor his exact
words to me were "At long last, the last piece of the jigsaw
puzzle fits". He told me that my Seretonin levels were way
down as a result of being Hypothyroid and the only medication he
could put me on was Prozac, as that was the only medication in this
country that would bring the Seretonin levels back to normal. He
actually diagnosed it as being "Classic 'A' Depression".
I told him that no way did I feel depressed. Disorientated? Yes.
Living in a world of my own? Yes. I suffered a lot from depression
before my diagnosis and this was nothing like that. I had been on
Prozac for a couple of weeks but found that my appetite increased
so much I couldn't stop eating. Being Hypothyroid, that was the
last thing I needed, so I decided to take the chance and come off
it. Incidentally I had put on a lot of weight during those years
and no matter what I did it just wouldn't budge!! Now, I have absolutely
no idea why, but at the same time I also stopped eating commercially
made bread. I just had no desire for it. It was a few weeks later
that I realised I was feeling really great again. Had all the memory
I wanted, no problems with concentration etc. My ability at work
had returned to what it was pre menopause. In the meantime I had
gone 'online' so decided to do some research on Thyroid Disease
and in the process I came across an About.com web site for Thyroid
Disease by Mary Shomon of America. It was through the Bulletin Board
eonnected to this site that I got to know Leslie, plus a lot of
other members who have also had bad experiences with Soy. I was
so impressed with the information she had in her web site that I
registered to receive her email newsletters. It would have been
during March 2000 that she put out a newsletter warning us all to
avoid Soy. (I believe this was her second warning). Within that
newsletter she had also listed several links written by scientists
who were also writing warnings about Soy, especially in regards
to the Isoflavones and Phytoestrogens and the Thyroid Gland. One
of those web sites was www.soyonlineservice.co.nz/ I was horrified
about what I had read but as I wasn't consuming any Soy (I thought)
I didn't worry too much about it. Two months or so later I was back
in cyber space and the good old short term memory, concentration
problems etc. A work colleague was quick to pick it up and suggested
that maybe it was something I had been eating and suggested I think
about what I could have eaten that I hadn't for a few months. I
then realised I had gone back to eating bread. I check the ingredients
label on the packet to find that I had been eating bread 'laced'
with Soybean flour, and in fact when I checked the ingredient labels
on all varieties of bread at my local supermarket there was not
one that didn't contain Soybean flour. Thinking back to what I had
read on the Internet I then realised that surely it had to be the
build up of Isoflavones in particular, and Phytoestrogens in the
Soybean flour contained in the bread I had been eating all those
years that had caused my problem by blocking my medication. What
wouldn't have helped either would have been Soy in one form or another
that was contained in other commercial packaged food I had also
been consuming without realising it. Once again I stopped eating
bread, brought myself a bread maker and stopped consuming all forms
of Soy. I have become an 'expert' at reading labels!!!! It is now
10 months since I came off all Soy products and although I am now
60 years of age, I feel more like 40. For years I had extreme difficulty
getting my TSH count below 5+. My December 2000 blood test showed
that my TSH was down to 0.03!!! Again proof positive that my medication
was finally working. And I am losing all the weight that I put on
during the menopause years. As the absence of Soy is the only change
in my diet surely that is a good indication of what caused my problems.
I dread to think of the number of folk around the world who suffer
from Thyroid Disease, are having problems, and are unaware that
in all probability it is due to the Soy they are consuming in one
form or another. As I see it, the biggest problem with this is that
once a business has found a way to 'con' the public, a large majority
have got to join the bandwagon and follow suit which means that
in the end we have nothing but Soy in this, Soy in that, until it
gets to 'saturation point'. All around the world (even in China)
health professionals are complaining about our children gaining
weight. It is all being blamed on too much watching TV, playing
on computers etc. But I am not so sure. Now, tests have proven that
if enough Soy is consumed that person will develop Hypothyroidism.
The amount of Soy our young children (indeed the population as a
whole) are consuming daily within one product or another must surely
build up over a period of time which in turn means the Isoflavones
within the Soy must eventually take its toll, and once the Thyroid
gland slows down so does the metabolism etc. I should imagine it
would take less Soy to affect a child than it would an adult. Think
about it!!! I know Soy has been around for a long long time. Before
food manufacturers starting putting Soy into this food and that
food a person was able to control the amount of Soy he/she consumed.
Now unless you avoid all foods that contain Soy you are unable to
do so."
"I would
like to get the word out that folk who are already Hypothyroids
should not consume Soy because it blocks their medication from being
effective. I have already proved that by coming off Soy as my TSH
which I would have extreme difficulty getting below 5+ is now down
to 0.03!!!! My doctor is so thrilled he is now telling all his Thyroid
patients to come off Soy. As well as that I am NOW finally losing
weight after years of putting it on. I wrote to Minister of Health
Annette King last year to ask her to get her Dept to 'look into
the affect that Soybean flour in our bread, buns etc was having
on Thyroid Disease patients and to make it public, but I may has
well not have wasted my energy!! As well as telling her my side
of the story, I also mentioned that my 31 year old daughter had
developed a goitre around 10 years ago and now she is off Soy that
Goitre had all but disappeared. She told me that they just weren't
interested and as far as my daughter was concerned to talk to her
pediatrician!!!!! At what age to children stop seeing their pediatrician!!
I didn't know whether to laugh or cry at that, I nearly wrote to
her and suggested she come off all Soy!!!"
"After some
research and a little self-experimenting, I believe that
I may have induced hypothyroidism in myself. Nearly two years ago,
after reading a book by Mark Messina et. al. about soy's benefits,
I began to add it to my diet (as well as modifiying my diet to be
nearly vegan). Within two months, I experienced fatigue so severe
that I asked my family practictioner to check my blood for anemia.
He also checked for hypothyroidism because my sister had only just
been diagnosed with it (we both suspect she's had it from earliest
childhood -- and my mom has told me on repeated occasions that my
sister gained a lot of weight from a soy-based infant formula, so
that may correlate with the other studies about what effects soy-based
infant formula may have). My blood tests came back normal; however,
no one told me any numbers related to the thyroid test. A few months
later, at an annual exam, my blood pressure was exceptionally low
(something like 104/60 and I felt dizzy for a week). I think that
it has always been somewhat low and my body temperature has also
run below 98.6 degrees; my menstrual cycle has always been irregular
but now I suffer from PMS.Since then, I have gotten increasingly
fatigued. Eczema, which had first appeared while I was pregnant,
returned with a vengeance. I continuously have a sore throat (I
have allergy-induced asthma and blamed my cats for the problem).
Even though I have added exercise (specificially yoga) and more
personal time, the overwhelming fatigue, eczema, and allergies worsened.
I noticed graying hair, thinning eyelashes, brittle nails. I was
beginning to grow despondent about my condition, wondering if I
was indeed depressed or overstressed, when I came across the briefest
mention to soy affecting thyroid functioning. I recognized the symptoms
of hypothyroidism (only then!) and decided to cut out all soy to
see if there was any response.While I can't say that I'm fully recovered,
I can assert that I've seen results right away. My eczema is nearly
gone and my energy is enough that I no longer feel as though I will
spend the rest of my life running on empty. Looking at everything,
I think that I already had classic symptoms of hypothyroidism, but
perhaps I was just borderline -- I can't really say as I was never
given specific numbers from my thyroid test -- and the soy pushed
me over the edge."
"I was reading
with interest some of your information on your web site.
I had an interesting experience with soy over-consumption myself.
I'm a 56 year-old male. I have always thought of myself as being
in excellent health. I'm a vegetarian who occasionally eats fish
and eggs and I also get a lot of exercise, both aerobic and strength
training. Several years ago I began to consume huge quantities of
soy and soy products: soy beans, soy meat substitutes, soy milk,
the whole thing. This summer I had an extensive series of blood
tests through the Life Extension Foundation, just out of curiosity.
I was shocked to find out that my parathyroid hormone (PTH) level
was 274.0 (the normal range was 12.0 - 72.0). My doctor told me
to stop eating soy and to take calcium supplements with Vitamin
D-3. I re-tested several months later and my PTH was back to normal.
I can only conclude that all the soy I was consuming was interfering
with my calcium absorption, and that my parathyroid glands were
telling my body to extract calcium from my bones so that there would
be enough calcium in my blood. Also, on these blood tests my levels
of T3 and T4 were on the low end of "normal." It seems
frightening that we're exposed to so much pro-soy propaganda. I
certainly fell for it. If I hadn't had those blood tests I'd still
be practically living on soy, and I'd be well on my way to developing
osteoporosis. I'm also surprised that there is so much soy-promotion
by companies that manufacture vitamins and supplements. Our local
health food store is filled with soy products."
"I do suffer
from a hypothyroid disorder. I was not fed soy infant formula,
however I have been a huge consumer of soy milk & soy protein
powder over the last 20+ years. I am a vegetarian and I am 45 years
old. I have suffered with hypothyroidism for the last 2 years.I
am a physician & I have noticed in my practice an increasing
incidence of thyroid disease, primarily in my female patients."
"I was just
diagnosed with Graves Disease today. In 1997, 6 mos after
starting Tamoxifen, I was becoming confused often. I thought this
was because I was in menopause and needed more hormones. So soy
seemed to be the answer. I started with two servings a day, and
as I have changed my diet to more protein I have increased my soy
consumption to 2 or 3 or 4 servings a day. It does appear that the
soy caused my hyperthyroidism."
"I am 45
years of age, female and have developed a goiter and have
tested positive for thyroiditis antibodies. The only thing that
has changed in my diet over the past few years has been consumption
of soy, which has been high because I have been taking Genisoy protein
powder (with isoflavones) on a daily basis for all this time. I
check photos of myself over this periodm, and noticed that the goiter
appeared only after a few months of starting the protein powder.
Unfortunately, I have also been eating cereal supplemented with
soy, as well as tofu and soy sauce. As of yesterday, I discovered,
by accident, all the information on the internet about soy and its
effects on the thyroid. I am normally an incredibly healthy individual,
and although I suffer from mild allergies I often go for many many
years without even a cold. May thyroid condition has come as a shock
to me, and I am taking the issue up with my doctor, who recommended
the diet in the first place. I will also be contacting a journalist
with a view to writing an article for the mainstream press in order
to help other women before it's too late for them."
"My daughter
was on Soya milk formula from 4 weeks old until approx 3years
old. The reason she was put on it was she couldnt tolerate my breast
milk. At the age of 2 her whole body started to swell starting from
her left arm to quickly spread over her entire body, she was in
hospital and swollen like this for 3 weeks dispite being given steriods,
they never did find out what caused it. She was tested for Thyroid
problems at 4 years old after an initial test showed there to be
a problem, but the second test came back clear. She has had lots
of on going problems, joint pains being the most on going problem.
She has had several broken joints, the worst was a spiral fracture
of the fima caused simply by her jumping over my sewing machine
cord.She developed breasts at a very early age and dispite her tiny
frame, started her menstral cycle at 11 years old, it was full on
from the start lasting up to 7 days and very heavy, with terrible
back pain, sometimes she said she just wanted to die. Her GP is
trying to find a contraceptive pill that will help, she is onto
a third one at the moment."
"Just today
I have been diagnosed with Goiter. It flared up 6 weeks ago
when I changed my diet to the "eat right diet" for my
blood group A, dairy food is eliminated and substituted with Soya.
Never before in my life have I used soya milk but began to like
it. Apparently I have had a goiter for some time but have not known
it. but I can only assume that the soya milk had enlarged it . I
feel better without Soya products and when it flares up and I read
the label more closely I can unsually find something I have eaten
that contains soya. I am but a beginner but now thanks to soya I
have joined the goiter club."
"I was finally
diagnosed with hypothyroidism in 1998 when my TSH level reached
(don't die) 289. I am 31 years old (29 at the time of diagnoses)
and the doctor I was seeing for six years, basically had me convinced
I was a hypochondriac. The reason for all my symptoms was that I
run too much (40+miles/week) and that I was gaining weight because
I probably was someone who couldn't eat as much as I thought I could
(my 800cal/day). ANYWAY-New Doctor, finally got my thyroid in order
or so I thought, but am a big fan of the Boca Burger (18 grams of
Soy Protein) and eat one EVERYDAY! Summer of 99 I was going to the
Doctor every month and my TSH level was getting higher and higher-Synthroid
went from .150 to .275. Then in January of this year (I was getting
rather tired of Boca Burger and switched to Tuna for my lunch.)
my TSH levels started going way down, my medicine went down to .175.
I demanded to see a endocrinologist (CAUSE I WAS GOING NUTS) and
I have been steady since. Last week I began eating the Boca Burgers
again, and I was just sitting here eating one and came across your
article. I checked my Boca Burger label and they don't list isoflavones
as part of the ingredient, but I don't know if they're just part
of the soy protein. I'm now beginning to wonder if these burgers
were the reason for my fluxuating thyroid levels. And wondering
whether it's safe for me to continue to eat the soy burgers (I love
them for they're a great source of protein). Do you know about Boca
Burgers? Do they contain isoflavones? And should I discontinue taking
them? This week I noticed a few symptoms returning. I wonder. "
"I have just
been diagnosed with Hashimotos disease. Over the past two
years my intake of soy has been huge. I will very often consume
twenty ounces of tofu a day a long with eight to sixteen ounces
of soy milk. Prior to this I rarely ate soy products at all. I am
supposed to start my thyroid replacement tomorrow morning--Synthroid.
Now I am wondering if I just stop the tofu craze will my thyroid
be able to right itself. Or have I dammaged my thyroid beyond repair.
How do I know? I started eating all the soy products in the first
place because I thought it was better for me than meats and fish.
Could it be that I have created this thyroid disorder in my quest
for better health?"
"I was recently,
and to my great suprise, found to have a TSH level of 13.6.
I have been drinking soya milk (1/2-2 glasses per day for the past
8 months) and I was wondering if this could have caused my thyroid
problems."
"I have
consumed, over the last 3 years an average of 50 g, sometimes
75 g or soy protein A DAY!!!! Yes, I have auto immune thyroid issues
and "low thyroid" and now take thyroid - biotech."
"I am a
47 year old woman in perimenopause. I was suffering with
very intense hot flashes and night sweats and began searching for
relief. After reading, going to my health food store, and speaking
to several individuals I decided to try a soy and a multi-herb supplement.
In July 1999 I started taking two 40 mg capsules of Soyplus and
six 400 mg capsules of Vitex 40 Plus daily. Almost immediately I
began gaining weight. I researched the herbs in the supplement and
found that black cohosh causes weight gain. I kept taking the herbs.
After I gained 25 pounds in five months I stopped taking the herbs
(but still took the soy). I had a medical checkup and my bloodwork
showed hypothyroidism."
"Thank you,
thank you, thank you! There are really people out there,
who care about all this. The good news is my wife has been off of
soy for 4 months now, and her goitre is gone. She feels much better
and has more energy, and is more emotionally stable. . My tinnitis
was also accompanied by a sudden allergy to wheat, corn, soy - in
fact it can now be activated just by eating. I was told to use flax
oil to suppress the allergic reaction to food. Now I am stopping
using flax because I have found it can have some of the same effects
as soy. This all came upon me like an avalanche so it difficult
to dig my way out. . I hope my message also will validate somebody
else with the same problem."
"Last year
I was diagnosed as having hypothyroidism and occasionally
I suffer from thyroiditis, I have been a vegetarian for at least
10 years now, however my consumption of soy had increased exponentially
over the last year or two. Recently when I had a scare of possible
thyroid cancer or goitre I began doing research and found your web-site.
Fortunately, I do not either, but have become gravely concerned
about my supposedly healthy diet and the effects it has had on my
thyroid. I am convinced that is why I am now on medication for hypothyroidism."
"Your website has been helpful
and quite an eye opener. I am saddened by the fact that I
will now have to contribute to the death of animals to be healthy,
but it is a step I have to take for my own health and will always
be respectful of the lives lost for my health."
"Two years
ago I was diagnosed with hypothyroidism due to excessive
weight gain, hair falling out by the hands full, aches and pains
and PVC’s. Two months prior to attaining these symptoms I
began a regiment of 1 Estroven tablet daily due to low estrogen
levels. I had never had a problem with taking the Estroven. It is
fortunate that for whatever reason I stopped taking it when I was
diagnosed. I will forever be on medication and deal with symptoms
coming and going due to false advertisement. Thank you for sharing
your website. I am hoping this reaches women in time before they
have to suffer like many of us have already."
"Two years
ago I was diagnosed with hypothyroidism due to excessive
weight gain, hair falling out by the hand full, aches and pains
and PVC’s. Two months prior to attaining these symptoms I
began a regiment of 1 Estroven tablet daily due to low estrogen
levels. I had never had a problem taking the Estroven. It is fortunate
that for whatever reason I stopped taking it when I was diagnosed.
I will forever be on medication and deal with symptoms coming and
going due to false advertisement."
"I recently
turned fifty. I was diagnosed with a goiter and nodule, as
well as with subclinical hyperthyroidism (normal T3 and T4, but
a very low TSH of 0.03) about two years ago. Coincidentally, I was
diagnosed post-menopausal just prior to that and my gynecologist
prescribed Cenestin 0.625 mg, which I have been taking since then.
I do not have any family history of thyroid disease, I have never
been exposed to radiation that I am aware of, my intake of iodine
is normal and I have a relatively healthy, normal diet. The endocrinologist
I am seeing now has recommended a thyroidectomy (FNA was negative).
He asked me about the medications I am taking and Cenestin is the
only one. He did not say anything negative about it. Is it possible
that the Cenestin caused or at least aggravated the goiter? Where
should I look to obtain accurate data and information on the correlation
between isoflavones and goiter? "
"I am a
49 year old woman. About a year ago, my GYN tested my hormone
levels and informed me I was menopausal. He put me on estriadol/progesterone.
Not liking the way I felt nor the perceived risk of hormones, I
stopped taking them. I decided after reading all of the hype about
soy to try it. Please understand, I never had a weight problem,
sleep problem, thinning hair, mood disorder prior to this. I began
taking a soy tablet of 50 mg per day. Although I worked out everyday
and ate a healthy diet, I started battling with my weight. 7 months
later, I gained approximated 10 pounds, my hair was falling out,
and was having terrible bouts with mood swings and temper. I was
convinced I needed to stay on the soy. So convinced, I bought the
Revival Soy package. I took it for a couple of weeks, everyday and
convinced myself I felt better and was losing weight, when in fact,
facial hair was appearing, my hot flashes had returned and I was
gaining weight. I stopped. I had major surgery in February and had
10 weeks of at home recuperation. During the first four weeks I
didn't take any vitamins, supplements or soy. All of a sudden I
had lost 8 lbs. BUT thinking I need to "get my body healthy"
I began the Revival Soy again. I stayed on it for one month. During
that time my mood swings were horrible, my hair started falling
out, hot flashes were back and gained back the weight. So I stopped
the Revival again. But this time, nothing happened. After reading
your website, it is apparent to me that NOTHING will happen because
my expensive vitamins have soy in them. They are going in the trash
tonight! I only hope and pray my thyroid is not destroyed."
"I have
been diagnosed with 2 nodules on my thyroid and will be getting
a "Fine needle aspiration" to determine whether they are
cystic or solid. I also had a complete hysterectomy about ten years
ago. Instead of HRT, I have been taking the product "Estroven"
for about 2 years. Could this product have anything to do with my
thyroid nodules? On the package it says "Purified Isoflavones
(from non-GMO soybeans and other plants)-55mg per tablet. I take
one a day. Please let me know soon."
"Hello,
I just discovered your web site from an article "The
Shadow of Soy" in the Pacific Sun, a Mill Valley, CA paper.
(May 15) I was diagnosed with hypothyroidism a few months ago and
was told to take "lyvoxol"?? to reduce my TSH level which
was 20, cholesterol 270. My high cholesterol did not bother me so
much because my LDL/HDL ratio is 1.37. I feel great and could not
start taking a drug for the rest of my life. I am 53 and have been
taking 55mg. of isoflavones "Healthy Woman" by Monistat
for 6 months as well as drinking soy milk and eatting tofu daily.
I am eatting seaweed as well. What a joy to discover that my blood
imbalance and high cholesterol is most likely caused by excessive
soy intake. I am stopping the soy and will have my blood retested
in 6 or more months. Thank you for getting this information out
to us.
"After nine
months of taking Cenestin a soy hormone replacement, my body
has gone crazy. I've seen five doctors and have gone to the emergency
room three times trying to get help. I have a terrible tingling
all over and my head feels like it going to explode. I have a terrible
redness over my throat area. The doctors tried treating me for a
reaction to something that I had consumed. Then I was treated for
anxiety. I lost 22 pounds in about three weeks. I was put on elimination
diets, but it didn't get better. My heart raced, I froze all the
time, my blood pressure dropped, and I began to lose my balance.
I quit the hormone on my own, because my family doctor and gynecologist
didn't think it could be the hormone. I do seem to be getting a
little better, but it has been five weeks."
THIS
LADY WAS ONE TESTIMONIAL WHO WENT FURTHER AND SET UP HER OWN WEBSITE
- ASK HER IF SHE IS "GENUINE"
"Some of
you may remember that last year I was touting soy along with
the rest of the medical profession regarding their beneficial effects.
I was consuming soy for their pytoestrogen effect to alleviate menopausal
symptoms. I was duped like so many other non-suspecting consumers.
I developed Hashimoto's Disease or acute Hashimoto's Thyroiditis
which is an acute autoimmune disease that affects the thyroid gland.
(in basic terms this means that my thyroid is attacking itself and
I can no longer produce thyroid hormone.) My initial symptoms included
things like severe joint pain especially in my hands, "trigger"
finger(s), carpal tunnel syndrome, excessive weight gain (I gained
about 25 lbs. in 3-4 weeks which, of course, when you are a Registered
Dietitian you can calculate how many calories you are taking in
and it just doesn't correlate with the amount of weight one is gaining.),
chronic fatigue syndrome, a "brain fog", depression, among
others. (Classic symptoms of hypothyroidism are that you gain an
unexplained amount of weight in a short period of time and that
your hair falls out). It took almost 4 months before everything
was figured out (by me) and it was not really diagnosed properly
by my physicians. About 3-4 months after I initially started the
soy supplement I had been taking (now this would also include any
soy isoflavone pills you may be taking as well), I developed a "hyper"
state, where my resting pulse rate was 125, and I was having 100's
of palpitations a day. Of course, so many of the symptoms I mentioned
above can be related to so many other diseases or conditions (especially
menopause and when you've never been in menopause before- how does
one know what is normal and what is not?) but of course, when the
"heart" thing started, this got me to a cardiologist and
fast. I didn't know if I was having a heart attack or what. The
only thing I could think of as I was waiting for the cardiologist
to call me back that I had done differently was the soy. So I went
onto google, put in "toxic effects of soy", and thyroid
disease (especially hypothyroidism) came up. Well, I 'm saying to
myself, "that doesn't make sense". How can I be hypothyroid
with a resting puse rate of 125! So, it's in the back of my mind
but I'm thinking it's not feasible. Anyway, I go to the cardiologist,
have all kinds of tests, echocardiogram, Holter monitor on for 24
hours, etc. I am told that "there's nothing wrong with me.
Go home and take your estrogen and you'll feel better." Well,
I won't tell you how angry that made me. I insisted that there was
something wrong with me and told the doctor to have my labs faxed
to me and I would look for another doctor to help me. When my labs
came through my fax machine, I almost fainted. They did a TSH (the
indicator for thyroid disease) and it was elevated! (which means
that I had an underactive thyroid). Later on, after researching
this thing to death, I found out that my symptoms of the "hyper"
state are sometimes quite common and many women wind up in the emergency
room as a result. Apparently, in Hashi's, just before your thyroid
stops working completely, it can go "haywire" and put
you into a hyper and hypo state. It has taken 8 months now for me
to start feeling better. Adjustments in thyroid medication take
some time and I have finally been losing weight, have no more carpal
tunnel syndrome, etc. So, this brings me to my word of caution.
If any of you, or your wives, are taking soy product, isoflavone
pills or homeopathic- type menopausal products, please be careful.
I have since found out that Hashi's can take 8 years to diagnose
(we don't build up the antibodies overnight to it) and from an email
that I sent out to a few of you the other day, I know that some
of you are also hypothyroid. There are tons of websites to go to
for more information or email me if you are affected by this and
I will be happy to help you find some. The soybean industy is a
multi-billion dollar industry in this country so they are trying
to keep this quiet, even though there have been doctors in the FDA
who have written position papers regarding the dangers of soy. Just
before I started writing this note to you, I received an email from
a woman in the United Kingdom who is interested in my testimonial
along with many others. She is a consumer representative on a government
committee which is looking into health concerns over phytoestrogens.
I have also been in touch over the past several months with people
in New Zealand who are also "on the bandwagon" regarding
the dangers of soy. They have several documented animal studies
showing the ill effects of soy. With so many new products coming
out containing soy, and the continued "touting" of it
as a major benefit, more and more women are going to become hypothyroid.
I am currently working as a nutrition expert in treating depression,
bi-polar disorder and substance abuse problems. I can't tell you
how many of the women who are admitted for depression are also hypothyroid
to the point now that the medical doctor automatically first checks
their TSH before the psychiatrists even start prescribing their
meds. If I hadn't been so adamant about taking over my own health
issues last August, I could have very easily wound up being a patient
in my own hospital. Menopause doesn't mean that we are supposed
to be depressed. Menopause is great, though I used to tell people
that was a whole lot of crap several months ago. If you are having
any of he symptoms mentioned above, Don't assume its the menopause.
It is estimated that there are about 10 million women out there
who have hypothyroidism and don't know it. Are you one of them?
Have your TSH level checked every few years and if you are taking
soy, you may want to give serious consideration to stopping it.
My guess is that a class action suit will eventually develop out
of all of this but of course, the way things work it'll probably
take a few years. I am going to be very actively involved in this
area over the next several months assisting those groups and individuals
who are publicizing this health concern. "
"My wife
takes a soy shake daily from a company called Revival (http://www.revivalhealth.com/).
She takes it for the claimed anti-cancer and anti-heart disease
benefits. She is coincidentally deficient in Thyroid function and
lately has been taking medication. She says it makes her feel great,
but her countenance doesn't glow anymore. I think it is the soy."
"I am 53
years old and was on HRT. I decided to replace my HRT with
a product called Estroven (each pill contains 40 mg of soy), sold
at most health food markets, grocery stores etc. My eyelashes started
falling out in great amounts and my doctor has scheduled me for
several exams because he thinks something is wrong with my thyroid
or adrenals. I don't have any thyroid problems that I know of and
feel quite healthy except for all my eyelashes falling out. I also
have begun to have dry eyes. Needless to say, I am quite distressed.
Is it possible that this herbal product has caused my eyelashes
to fall out?"
"I have
recently been diagnosed with hypothyroidism. I have been
put on 15 mg synthrox. I have consumed 160 isoflavones a day for
3 months...taken for menopause. If I stop the soy will my hypothyroidism
go away?"
"I am 50
years old and was diagnosed with Hypothyroidism 6 years ago.
I have been on synthroid and not without its ups and downs since
my diagnosis always fluctuating between.075 and 088mgs. I started
taking promensil 6 months ago and in the last 4 months my TSH levels
have gone from 4.9 to 6.4 to 7.1. My dr. told me that I was not
being consistent with the medication. Simply, NOT TRUE!! After reading
your website, I realized that i wasn't crazy. I am VERY concerned
that i have done more damage to my thyroid. Anyone on PROMENSIL
should get off of it ASAP............ It is POISON!"
"I am 21
years old- approx 12 months ago I developed a lump in my right breast,
I had the lump checked out and it was confirmed as nothing but fibroglandular
swelling, however it was quite painful, I was also suffering fatigue,
weight gain and poor libido. The doctor suggested I commence Hormone
Replacement Therapy, I was a bit frightened by the prospect of taking
HRT a predisposed drug for Menopausal women, so it was suggested
by a Pharmacist that I take phtoygestorone/ isoflavones through
natural menopausal supplements and soy consumption. So as a lover
of dairy (I was already using soy to reduce my daily dairy intake)
I was happy and commenced eating soy hoping that my painful breast
lump would go down. The lump however got larger and more painful,
I guess I did not connect that with the soy because I was told it
would reduce these symptoms so I took even more soy. Drinking up
to a litre of soy milk, eating a tub of soy yogurt per day, having
miso soup every other day, eating soy & linseed bread and even
eating soy cereal !! (as you know many food types come in soy- and
I would try almost all of them). My lump got even larger (approx
the size of a golf ball- and the pain so unbearable I couldn't wear
certain lingerie)- It was diagnosed as fibrocystic breast disease.
I was connected to a hormone website by Sherill Sellman- which was
very helpful and I was told to stop taking the contraceptive pill
(which I have been taking for approx 5 years) and to reduce/ stop
the soy intake as I was suffering an oestrogen excess. And what
relief !!!, I stopped taking the pill only 5 days ago, but ceased
my soy intake about 2 weeks ago and for at least the past week,
the lump has considerably reduced in size and the pain has almost
stopped- which suggests that it may be connected with my soy intake,
because the symptoms began to clear before I stopped taking the
pill. I seriously do believe that soy can be consumed in excess-
and moderation intake should be informed. I also believe that soy
contributes to constipation, as a sufferer of irritable bowel syndrome,
I take fibre shakes to assist chronic constipation, despite having
large amounts of fibre in these shakes and consuming up to 3 litres
of water daily, I still have major trouble evacuating my bowel-
I believe this could be due to taking the shakes with soy milk-
but I haven't tested this to see if its true."
"I hope
you can answer some questions for me. I am a very healthy
38 year old female. I have never had any symptoms of hypothyroidism
and it does not run in my family. No one that we know of has ever
had it in my family. About 3 months ago after listening to a video
which raved about the benefits of soy, I began taking soy isoflavones
2 times per day as prescribed on the label. Each tablet was 50 mg
of isoflavones. I took these regularly for about 2 months. My problems
started after only 1 month of taking them, however. I began to lose
my hair by the handfuls which has never happened to me before. Since
I am very healthy, I knew something was wrong! That is when I called
my doctor, but also decided to research things for myself. I
read Mary's thyroid page and heard soy could have a negative impact
on the thyroid. I immediately stopped taking the isoflavones and
scheduled an appointment for a check up. The doctor ordered a thyroid
test and it showed my TSH level was 10.31. After changing doctors
(because the doctor doing the 1st test wanted to put me on medication
immediately), my level was tested again about 1 week later. That
time my TSH level was 8.4. It was coming down, but still elevated
over a normal reading. After waiting 1 more month, the doctor repeated
the test and this time my TSH level was 7.1. Again, it is returning
to normal, but because it was still elevated, my doctor started
me on .05 mg of synthroid. He seems to dismiss the fact that soy
could have had anything to do with my decreased thyroid function.
I have had NO symptoms ever of hypothyroidism, but after 1 month
of regular use of isoflavones my troubles began. It seems possible
for a connection to exist, but that is why I'm writing to you. 1)
Do you feel with only 2 months of consuming soy isoflavones that
it could cause my abnormal test results? 2) Do you feel since my
TSH levels show a slow trend of coming back to a normal range that
my thyroid will resume normal function? 3) Since I have started
taking medication will my thyroid have a chance of normal function,
or will the medication through things off permanently?"
"I am a
very healthy 48 year old woman. An avid runner, I have followed
a primarily vegetarian diet for over five years, and have always
had excellent blood chemistry results at checkups. Last year, however,
I added something significant to my regular diet of fruits, vegetables,
beans and grains: soy products. I followed the conventional wisdom
that this would alleviate early menopausal symptoms, keep my heart
healthy, etc. I ate tofu daily, consumed soy milk in abundance,
snacked on soy nuts instead of regular snacks, and looked for soy/isoflavones
in my supplements. Results: I now am facing surgery for a goiter
(enlarged thyroid) with multiple nodules. I have symptoms of thyroid
damage. My skin, nails, hair, are all suffering visibly. I have
chest pain when I run. Worst of all -- my cholesterol has RISEN
from 137 to 210 in the last 6 months! A non-smoking, non drinking
vegetarian who eschews all dairy products simply cannot experience
this kind of change in less than six months without some external
factor. There is no thyroid disease in my family, and no other explanation
than the introduction of large
amounts of soy into my diet. My endocrinologist agrees that the
diet could have caused the thyroid "disease," but I will
still have to face surgery and a life time of thyroid replacement
drugs. If only I had known!"
"My
daughters, now 18 yrs. and 15 yrs. old, had a milk allergy as
infants and were fed soy formula. They have both been
diagnosed with autoimmune thyroid disease and hypothyroidism."
"I have
two adult children who were fed soy formula as babies,
until they were one year old. Fortunately, they were both
able to go on cow's milk without difficulty after their first
birthdays. Unfortunately, the damage may already have been
done. My son may well be infertile, as evidenced by having
had a long-term relationship with a young woman who didn't get
pregnant despite never using birth control. When they broke
off their relationship and she became involved with another
man, she became pregnant within a just a couple of months. My
daughter developed polycystic ovarian syndrome as a teenager
and, until she went on the pill, suffered periods so painful
she vomited and had to miss school one to two days every month. I
never made the connection with soy (why would I, without knowing
what I know now?), but I don't know for sure there is a
connection between her disease and soy formula. In
addition to the ovarian disease, she developed hypothyroid
symptoms shortly after the birth of her daughter.
I myself developed thyroid disease in the
early '90's, which went undiagnosed for six years because
my doctor (he doesn't deserve the title) believed I was
"hysterical" and told me to "go see a psychiatrist"
- without ever running a single test to find out if something
was physically wrong with me. Fixing the thyroid problem
helped a little, but there were still a lot of residual health
problems brought on by being obese for so long, and which
I am still battling today. About a year ago I began using
soy in earnest in the mistaken belief that it is "healthy"
and would help me lose weight. Imagine my horror when
the overwhelming fatigue from which I'd finally been
freed, along with hair loss, returned, and I actually began
GAINING weight again! I was aware that the symptoms seemed
to begin concurrent with my increase of soy intake, so
I stopped using the soy protein powder and did a little
research. Unfortunately, not enough, because the only
information I found was a warning to not use soy products
within four hours of taking my thyroid medicine. This
led me to believe that soy at supper was still okay, since
I took my medication before breakfast, and I continued to
feed soy to myself and my family, still under the misinformed
notion that soy protein is good for the health. I eventually
had to begin taking more thyroid hormone. It is only
recently, while doing research on coconut oil, that I found
all this other information about the dangers of soy.
I'm so angry I could spit nickels, but except
for protecting my own family from soy, I don't know what else
I can do. (It's already too late for my kids, and for
my granddaughter, who was also fed soy formula - WIC, a government
agency, provides it for free to low-income families. Horrifying,
isn't it?
The American people are notorious for laughing
at, scorning, ostracizing, and labeling as "lunatic fringe"
and "fanatics" anyone who dares question the
status quo and has the courage to speak out. Indeed,
this is a big part of the reason why the Great American
Soy Hoax, as I call it, was, and is, possible. (This
soy hoax is right up there with the USDA's Food Pyramid,
with it's lethal amounts of grains and so-called "healthy"
vegetable oils, the direct cause of the obesity epidemic
in America.) Thanks for the wealth of information (and
legitimate sources of that information) on your website. Many
thousands more people are going to grow fatter and/or sicker,
and many of those will needlessly die, never knowing that
their government, and their own arrogance and ignorance,
killed them."
"Thank
you for the service you are doing by having this site.
As the mother of a wonderful 4 year old boy, I'd like
to add my 2 cents regarding the extreme health hazards of
soy. My son was born with a 3rd degree hypospadias which
required 1 (yes, ten) surgeries to correct. He had the worst
hypospadias a male can have, where his urethra's opening appeared
at the base of his genitals. How did this utter nightmare
occur? Well, little did I know that the DAILY tofu and
soymilk I was drinking for the past decade (I was foolishly
a vegan) was highly estrogenating my already estrogenated
body. Healthy women make enough estrogen as it is. The phyto
estrogens disrupted my fetus' development. I have met
other women who had son's with hypospadias and they ate
soy daily all during pregnancy. Enough said. Thank
you for helping the public realize how detrimental soy is,
and that it's really just junk food."
"My
son has recently been diagnosed with hypothyroidism, he
is 11 months old and has been on soy formula since birth. We
would like to know what we can do to reverse the process if
possible and what alternatives are available. He is allergic
to milk and milk products. We were thinking possibly
Goats milk or something along these lines at least till he
can other type of foods."
"I
have hyperthyroid currently but initially I started with
a hypothyroid condition. I used to consume large
amounts of Lec-i-then, a soybean derivative. This decision was
due to large amounts of triglycerides in my blood. I
consume at least 60 % of soy products in my diet. Currently
I am treating my medical condition with thyroid reduction medication
(methemizole). However, reducing the amount of animal products
has sufficiently reduced the the severity of my thyroid condition.
I eat fish a lot and take fish-oil for my triglycerides. I was
not introduced to soy products until I was in my late 20's. However,
my son was fed baby formula with soy products and he seems to
lack the signs of male stimulus or ambition for life as I
did at his age. His sexual organs also did not develop normally."
"My
daughter Melissa , age 25, was diagnosed with thyroid cancer 3
years ago-- she had surgery 3 years ago and Thank God She
has been in remission since. When she was 13 mo. old she was put
on soy milk by the Dr. because she did not tolerate milk well.
Do you think this had anything to do with her cancer?"
"I
read your article about the effects of soy on thyroid function
and am contacting you as requested. I am a 54 year old female
and as an infant was fed soy formula because of milk allergies. Today,
I suffer from hypothyroidism and have been taking soy suppliments
as a defense against menopausal symptoms. At least, I was
until someone mentioned to me that I should not take soy if I
am taking synthroid. I don't know what more you can tell me about
this, however, I have been struggling the last year or two (probably
as long as I have been taking soy isoflavins), to loose weight
and in spite of a complete change in eating (Weight Watchers program)
for 2 years, and a regular exercise program, I am unable to loose
weight."
"My
first two children took Soy Formula. The first wasn't switched
to ProSobee Soy Formula until he was 11 months old...when the
pediatrician decided he was having problems due to regular formula.
He was very HYPER by age 2...today's ADHD...and he was placed
on Ritalin by age 4...a drug I pitched when it was giving him
Zombie-like behavior. My second child was put on ProSobee about
age 6 1/2 months when she was being weened off the breast...(having
done very well ON breast milk). She was having problems with regular
formula as it was being introduced into her diet while the breast
milk was being decreased for her. SHE developed Thyrotoxicosis
by age 10 ! From her early pictures the endocrinologist had us
to bring to him...he felt she might have been UNDERActive thyroid
in kindergarten...and was slowly moving towards OVERactive as
time passed...then toxic by age 10. He also told me that he felt
the good diet I had my first child on...in order to stop the Hyperactivity
before he went to school....probably DID work for him..since his
case could most probably have been HYPERTHYROIDISM..which IS often
not recognized for what it really is..and often passed off as
Hyperactivity. He explained that the diet for Hyperactivity is
much the same as for Hyperthyroidism. As my third child was being
weened off the breast..and developed problems with regular baby
formula...I switched her to GOAT's Milk...and she slept as much
as she did while on the breast...remained a very CALM well adjusted
baby/child...and did NOT have any signs of thyroid problems though
she was a preemie (8 month gestation...4 pounder). I would have
to agree with the belief in soy products raising the risks of
thyroid problems."
"My pediatrician
advised my mother when I was a new born that I was allergic
to breast milk. I was given soy products as an infant until
I could eat solid foods. I have suffered from hypothyroidism,
had a left thyroid lobotomy and the frozen section showed that
I had a tumor. I developed a goiter around the age of 7 years
old. When the goiter tripled in size by the time I was 16
I begged my family doctor to send me to an Endocrinologist.
My Endocrinologist at that time diagnosed me with hypothyroidism.
The goiter did not decrease in size with the treatment of Synthroid
and subsequently he tried to drain my goiter as if it was a cyst. Without
results, I was sent to Surgeon for removal of the left thyroid.
As an adult, now 29, should I refrain from using Soy products? Could
the soy products given to me as an infant have led to my problems
with my thyroid now?"
"I
have a 14 year old daughter who suffers from Hashimoto's Disease.
She was diagnosed about 3 years ago. When she was an infant,
her pediatrician had me put her on Soy Milk, which I did.
I was horrified to learn when she was 10 years old that she had
an auto immune disease called Hashimoto's! I have no thyroid
problems in my family that I am aware of. My husband has a
few elderly relatives who are hypothyroid. In fact my husband,
just last year, began taking Synthroid. None of these relatives
had a thyroid problem as a child, they were all middle aged or above
at the onset".
"I
am 45 years old and was fed a soy based formula as a baby
called pro-sobee. I have had thyroid nodules for about 20
years, but only diagnosed in the last 8 years or so. I had
the left side of my thyroid removed about 11 days ago along with
the bridge between the sides due to a needle biopsy that showed
some hurthle cells. The biopsy was done after the left nodule
had grown even after Synthroid had been used for many years in an
attempt to suppress the functioning nodules. I have just found
this information on soy formula and the possibility of thyroid problems.
I also have been drinking soy milk recently to help with hot flashes
in peri-menopause. I would be interested in any information
you can provide."
About.com Thyroid Disease site guide, Mary Shoman,
has discussed the risk of soy and isoflavones to perimenopausal
women with nutritionist Larrian Gillespie MD. Here is an excerpt
of the interview which includes a powerful testimony of what happened
to Gillespie when she tried an isoflavone supplement.
Shoman: Many women are being told
to take soy products as a way to help avoid breast cancer, minimize
menopausal symptoms, and lower cholesterol. But some studies are
showing that excessive soy consumption -- particularly when women
are consuming large amounts of soy powders, isoflavone supplements,
and excessive soy foods and soy milks -- can damage the thyroid
further. Do you have any thoughts about this for women with thyroid
disease, who may be confused about whether or not they should add
more soy to their diets? Do you think soy products are safe? Or
how much soy in the diet, and in what forms, would you consider
safe?
Gillespie: You hit the nail on
the head when you said "excessive soy consumption." I
was recently in China and saw how little soy is used in the daily
diet of the Chinese. We in America think we must consume the entire
container of tofu in one or two days, when that is enough for a
whole week! Taking 40mg of isoflavones causes hypothyroidism in
susceptible women...and I mean those in transitional menopause,
the new word for perimenopause. I do not recommend that women take
supplements. I tried the experiment on myself and developed full
blown hypothyroidism in 10 days.
"Soy may
actually make your thyroid lazy", USA Womans World Mar
16 2001 p19.
Lately women are hearing a lot about the proven
health benefits of soy. What they are not hearing, says soy researcher
Michael Fitzpatrick, Ph.D., is that as little as 30 mg of soy isoflavones
- the amount in 5-8 ounces of soy milk - have been proven to suppress
thyroid function. "the isoflavones in soy act like a hormone
in the body. And in many women - especially those who eat large
amounts of concentrated soy powder or take isoflavone supplements
- this disturbs the body's hormonal balance, triggering or worsening
thyroid problems," explains Dr Gillespie. Some experts are
even calling for the makers of soy products to remove these antithyroid
isoflavones from their products. In the meantime, Dr Gillespie recommends
those with a lazy thyroid avoid soy altogether.
Thyroid Storm
"Thyroid storm is characterised by the abrupt
onset of more florid symptoms of hyperthyroidism, with some exacerbated
symptoms and atypical signs. Included are fever; marked weakness
and muscle wasting; extreme restlessness with wide emotional swings;
confusion, psychosis or even coma; and hepatomegaly with mild jaundice.
The patient may present with cardiovascular collapse and shock.
Thyroid storm, which is rare in children, results from untreated
or inadequately treated hyperthyroidism and may be precipitated
by infection, trauma, a surgical procedure, embolism, diabetic acidosis,
or toxemia of pregnancy or labour. Thyroid storm is a life-threatening
emergency requiring prompt and specific treatment".
Responses to Thyroid Storm
"Hello;
at your site I noted that you wanted input concerning the
effects of Soy on Thyroid function, and therefore am sending the
following. I have been on Thyroid medication for about 18 years,
and have found that if I eat Soy products for a couple of months
I develop Hyperthyroidism, or Thyroid Storm, and an increased heart
rate that is so severe that it wakes me up at night, and I can't
sleep for several nights till it wears off.. I have started and
stopped the Soy several times to confirm that it is the cause.
At the age of 39, I suffered a massive heart attack
four months post partum after months of upper respiratory problems
which culminated in pneumonia. It blew out the left ventricle.This
was the culmination of a multitude of lifelong health problems too
long to list. The primary problems have been severe insomnia and
sleep paralysis, asthma/upper respiratory problems, and extreme
proneness to soft tissue injuries such as tendonitis, etc. After
my heart attack, I turned to the Internet in a search for answers,
and was finally referred to the About.com Thyroid Disease Forum.
I started checking into it, and upon reading the extensive lists
of symptons associated with thyroid problems, almost all of which
I have to some degree or another, I was finally able to start connecting
the dots. I finally insisted that I be given some blood tests, and
yup, they came back that I'm hyperthyroid. I've since had more extensive
testing done. A full thyroid scan in December revealed that half
my thyroid has been completely destroyed. The following week, I
had an appointment with my cardiologist, who had the preliminary
thyroid test results back. He was stunned. My cardiologist was at
a loss to explain why the hospital didn't discover the thyroid issues
when I had my heart attack. He said it's supposed to be one of the
first things they check for when a woman of my age shows up with
severe heart problems. I've confirmed with my mother that I was
given soy infant formula manufactured by Mead-Johnson. My mother
first noticed how severe my insomnia was when I was just six months
old.
I am fat and have high blood pressure. I am dieting,
blood pressure is down, and, whilst looking for low fat and high
protein snack sources I tried a Genisoy bar...liked it and, preparing
for a long field trip, order 8 boxes (10 and 12 bars per box) on
the internet. For three weeks I consumed 4 or 5 bars a day (60-75
grams of soy protein total). A few days after returning, early in
the morning, I had my first attack of supraventricular tachycardia
(severe heart arrhythmias). My wife was out of town so, while still
able to, I called an ambulance...they took me in and my pulse was
converted in the emrgency room with IV calcium channel-blocker.
I was given an appropriate prescription for the drug, filled it,
went home, and tried to figure out what had hit me. Woke up the
next morning with ANOTHER attack. Back to the hospital (wife driving
now), ER conversion of pulse, blood tests, chest X-ray, doctor's
visit, elevated creatine and BUN...off to Tucson, AZ to a cardiology
hospital where a number of tests were made (fewer than requested,
enough to diagnose...I know medicine). Nothing wrong. Heart fine,
no irregularities, blood sugar, lungs, everything fine...blood enzymes
back to normal. They upped the medication...back home puzzled. Recollected:
tiredness for a few days before the first attack, and a tightness
or sense of swelling in the sides of my neck, and some poor sleeping
several nights previously as well...sweating for a couple of nights
as well. For several days after getting back home the second time
I slept poorly, had rapid and anxietous breathing, and frequent
light palpitations during the day (NOT conducive to comfort...little
bubbles of palpitations that hinted slightly at the two serious
episodes). I have never consumed soy protein before (I hate tofu,
don't like soy milk, they both get me inflammed and subject to wheal
responses), and NOTHING done prior to the attacks has been different
from the norm. No heart problems, no known cause for the two episodes.
At the time it felt as if it was a reaction TO something, rather
than an organic or physiologic sequellae FROM a physical state.
Letter To Oprah
The following is a letter written to Oprah Winfrey
by a concerned Husband of a long time thyroid disease patient.
"As
the husband of a long time thyroid disease patient who is
my dearest and most lovely wife, I am writing to ask you and your
staff to consider a program devoted to the complexities of thyroid
disease as it affects women. I bring an atypical background to the
table, an MS in Biochemical Genetics and thus the necessary technical
background to evaluate the physiological complexities, as well as
a healthy skepticism that current trends in medical care delivery
are up to this challenge.
My wife has a lifetime history of thyroid disease
first in its 'hyper' form and then over the past fifteen years in
the mirror image state of hypothyroidism. As you know, hyperthyroidism
induces a high energy, high anxiety state that serves a Type A executive
personality very well while the underlying systemic stress on the
heart and nervous system is difficult to perceive and hard to formally
diagnose. Hypothyroidism, which is a deficit or absence in the production
of thyroid hormones by the thyroid gland, induces a cascade of symptoms
which are often misunderstood as everything from depression, to
hypochondria, eating disorders or a nebulous failure of
personal will power. This misunderstanding has become a nation-wide
phenomenon of serious proportions, as it is embedded in the medical
and HMO communities, as well as individual lives and relationships.
Sadly, you have had 'experts' on your show, such as Dr. Phil, who
have perpetuated this misunderstanding in order to serve their 'simple
solutions for complex problems' approach for their own career success.
My first plea to you is to believe that Thyroid Disease is NOT simple,
it can rarely be treated well by a simple approach to thyroid prescriptions
derived from simplistic model about what constitutes low or high
levels of key thyroid hormones and proteins as determined in the
usual blood tests. There is a nation-wide outcry from women of all
ages (and a few men as well), as they remain ill and confused while
taking the supposed 'correct' thyroid prescription.
The explanation for this complexity, which can
not be reduced to simplicity, lies in the realm of molecular biochemistry
and sadly is beyond a discussion for the general public. The tale
cannot be reduced to news bite format as it references matters of
polyallelic genetic systems and complexes of regulator genes that
respond on varying time scales that range from hours to weeks, all
of this varying from individual to individual in critical details.
There are two thyroid hormones, one converted into the other, one
form much more active than the other and only one thryoid hormone
can cross the blood brain barrier. Thyroid hormones themselves regulate
basic metabolism, as they control the energy production of cell
organelles known as mitochondria. In simple but accurate terms,
less energy per unit time, per hour, day or week produces severe
muscle weakness, unusual pain episodes within the nervous system,
mental confusion and the well known 'brain fog'. And thus we come
to real people experiencing real difficulties, hour by hour, day
by day.
When a rapid onset of hypothyroidism began to
afflict my dear wife, she quickly began to:
a) gain weight;
b) experience almost continual fatigue;
c) experience sharp stabbing muscle pains in her
limbs from slight exercise;
d) lose her mental acuity and sharpness for significant
periods;
e) acquire a disrupted sleep cycle; and
f) wrestle with a continually irritated digestive
system.
Additional symptoms included hair loss, continually
dry and itching skin, very slow hair growth and an emotional roller
coaster of high anxiety and temper outbursts that would appear instantly
without apparent cause, yet could be followed by mental and emotional
lethargy at other times. The common M.D. diagnosis of primary depression
is absurd, these hypothyroid disease symptoms would make anyone
depressed. Depression is a fallout from living with such a mess,
often while interacting with uncomprehending doctors, spouses, children
and friends.
What I knew without question as a husband living next to someone
so deeply afflicted, is that the symptoms were objectively real,
and not the cause of a self abusive life style that included over
eating, poor diet, or a primary emotional disorder. These symptoms
are the result of a broad based physiological problem, and damage
to one of the foundations of everyone's metabolism. Damage the foundation
and the house begins to crack, the body's energy supply is disrupted,
food metabolism is so altered that no amount of exercise or diet
will cause weight loss and the nervous system is overly sensitized
and loses its resiliency. Life will become hell unless thyroid prescription
dosage is very precisely tuned to each individual's cascade of symptoms.
As the underlying molecular model is individual genetics - and I
emphasize individuality here - there is no
generic formula to prescription dosage that can be applied across
the board. The overworked, over scheduled world of M.D's and HMOs
is faced with a diagnostic problem they cannot cope with easily.
By virtue of the deficit in advanced endocrinology education in
the nature's medical
schools, they are singularly ill prepared as well. Success in treating
a serious hypothyroid condtion was achieved here by very careful
attention to the suite of complexities I am referring to, first
and foremost by fine tuning presciption dosage against whole body
symptoms."
If you suspect soy/isoflavones have damaged
your thyroid, or wish to submit a testimony to us at SoyOnlineService,
please contact us.